Nicholas Boggs
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Nicholas is a 6 yr old with lots of spunk and full of love. His nickname is Papa Bear and he is a very happy boy. He has blessed our home with his continual sweetness. He was born with a genetic condition called Fanconi Anemia. He had a T-E fistula repair at birth and all the throat area was underdeveloped. He has paralyzed vocal cords and had stridor which continued to worsen. He had his tracheostomy when he was 2 months old due to the stridor and paralyzed vocal cords. They do no know if the cords were stretched during surgery or were like that from birth. They weren't working at about a month old and he aspirated his formula and resulted in aspirated pneumonia. He now has a Mic-Key button for his continuous feedings.
Fanconi Anemia is characterized by bone marrow failure resulting in Aplastic Anemia, Leukemia, MDS, or hemorrhaging. Bone Marrow Transplants are usually the normal course of treatment but Nicholas has pseudomonas colonized in his lungs and cannot have a BMT. He is currently in bone marrow failure now and we are desperate for a miracle. If we don't get our miracle, our options are running out. Please help us pray to find the correct medicine to help boost his bone marrow.
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- Follow his progress on his website at: www.caringbridge.org/va/nicholas.e.boggs
- More Fanconi information: www.fanconi.org
Thankful for the opportunity to be the parents of such a special little boy.
Jeff, Donna, and baby brother, Spencer.
