Candelario Alejandro Duarte
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MY SON IS CANDELARIO ALEJANDRO DUARTE, BUT WE CALL HIM ALEX. HE WAS BORN WITH MILD COMBINATION FORM OF CEREBRAL PALSY AND SO HE HAS SPASTIC DIPLEGIA, DEVELOPMENTAL DELAY, HE WEARS BILATERAL AFO'S (LEG BRACES), REFLUX, DISMOTILITY. HE IS CURRENTLY IN PT AND OT. FOR 14 MONTHS I KNEW SOMETHING WAS WAY WORSE GOING ON THAN JUST REFLUX. HE ALWAYS CHOKED ON EVERYTHING AND NOTHING AND SO FINALLY THEY RAN NUMEROUS TESTS AND FOUND NOTHING BUT REFLUX THEN HE STARTED TO TURN CYANOTIC ON ME (TURN BLUE), SO THEY HAD ME TAKE HIM TO ER ON MORE TESTS LATER FOUND YES HE HAS REFLUX STILL BUT NOT TO THE POINT FOR HIM TO TURN BLUE. THEY FOUND HE HAD APNEA EPISODES WHEN HE WOULD DESATURATE TO 70%. A PULMONOLOGIST WAS BROUGHT IN AND HEARD A FEW DIFFERENT SOUNDS I HAVE ALWAYS HEARD THAT OTHER DOCS BRUSHED OFF AS AN ONCOMING COLD AND SAID HE WANTS A BRONCHOSCOPY DONE. FEB 16 THEY FOUND HIS VOCAL CHORDS ARE PARTIALLY PARALYZED AND AFTER SPEAKING WITH NUMEROUS COLLEAGEUS, ALL THE DOCS ON HIS CASE, PLUS DOCS FROM VARIOUS UNIVERSITIES THEY ALL CAME TO THE CONCLUSION THAT THE ONLY SOLUTION FOR HIS SURVIVAL WAS A TRACHEOSTOMY (WHICH I WAS TOLD THIS THE NITE OF MY 30TH BDAY). DURING THIS VISIT MY HUSBAND WAS OVERSEAS (HE IS IN THE MILITARY), SO HE CAME ON EMERGENCY LEAVE THE 18TH AND THE 19TH THEY CONFIRMED THAT THE CULTURES OF THE BRONCH CAME BACK POSITIVE-HE HAD ASPIRATED FOOD, SALIVA, AND MUCOUS SOMETIME DURING THE LAST YEAR AND THEREFORE FURTHER PROVED HE NEEDED THIS SURGERY WHICH WAS DONE 2 DAYS LATER. MY HUSBAND HAD TO GO BACK ON THE 8TH AND IS CURRENTLY FIGHTING TO COME HOME FOR GOOD. I AM BEYOND OVERWHELMED WITH ALL OF THIS AND THIS WEBSITE OF YOURS HAS HELPED A GREAT DEAL. I WOULD LOVE TO KNOW THAT MAYBE MY SONS STORY COULD HELP OTHERS AS I AM LOOKING FORWARD TO OTHERS STORIES HELPING ME.
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SINCERELY,
LAURA DUARTE
