Kellirae Cox
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My daughters name is Kellirae she was born August 18, 2001. She has been diagnosed with stickler syndrome. She was born completely deaf, has a grade two heart murmur, has tracheomalacia and laryngomalacia, has severe reflux, She also has an recessed chin and wide set eyes. She spent her first five weeks of life in NICU. While there we were unable to get her to eat so at six weeks she had a G-tube put in. At four months old after two episodes of respiratory failure she was given a trach. Two weeks later she was given a nissen fundoplication. She is now six months old at home and doing very well. She is steadily gaining weight and developmentally is beginning to catch up. Please feel free to contact me with any questions or suggestions.
