Help and FAQ
Introduction
As many of you may know, the "kids with tracheostomies" section is a popular
part of Aaron's Tracheostomy Page and features kids from all over the world.
Parents have been sending me photos and bios for years and I've been creating
and updating the pages manually. However, the site just got way too busy and I
could no longer keep up with the frequent new kids and page updates. I needed a
way for parents to create and update their own kids pages. Also, with the
popularity of today's social networking sites, I wanted to build a community for
parents of kids with trachs.
So, the new "Kids with Tracheostomies" site is up at
trachkids.org! The new site is still
being tested, (beta testing), so do let me know what you like, what you don't
like, etc.; comments and suggestions are welcome. Most importantly, let me know
if you find any programming bugs.
I am currently in the process of moving the kids pages from the old site to
the new site. If your child has a page on the old site and you decide to
create a new one, please let me know so I don't duplicate kids as I move the old
bios to the new site.
I plan to be very aggressive in keeping the site honest (free from spammers,
fakers and trouble makers). Right now I've got a triple check system. First,
email addresses must be verified. Second, when you first set up an account, I'll
be checking your location against your IP address. Lastly when a child's profile
is first added, the new profile will have to be manually approved. After I check
the profile, it will be visible on the site. I'll be doing these checks on all
users which will take some time, so be patient with each step in the process.
Once your first bio entry has been approved, I do not plan on approving updates,
blog entries, guest books, etc., so once your bio has been approved, further
entries will not require approval and will be added to the site right away.
Terms of Service
You agree, through your use of this service, that you will not use this site
to post any material which is knowingly false and/or defamatory, inaccurate,
abusive, vulgar, hateful, harassing, obscene, profane, sexually oriented,
threatening, invasive of a person's privacy, or which violates any law. Note
that all content will be visible to everyone. Please use common courtesy and
avoid any inappropriate language and/or "flaming". Flaming means making a post
which is derogatory toward any group or individual. Be careful when using
sarcasm and humor. Without face to face communications jokes may be viewed as
criticism. You also agree not to post any copyrighted material without
permission.
Any user who feels that content posted to this site violates these Terms of
Service is encouraged to contact us immediately by email (info@tracheostomy.com).
Objectionable content will be removed within a reasonable time frame, if we determine that removal is
necessary. Content may be removed and users may also be blocked from using the
site at the
discretion of the site administrator.
Disclaimer
The information and resources on Aaron's Tracheostomy Page are for educational
purposes only. This web site and its resources are not engaged in rendering
medical, pharmaceutical, therapeutic nor legal advice or professional services.
The information provided through these pages or any links from this web site should not be used as a
substitute for professional advice by qualified doctors and/or therapists.
The content, opinions, and information posted to trachkids.org, the message
boards and the trachties listserv are those of the author and not necessarily
those of tracheostomy.com or trachkids.org.
FAQ
Q. Help! I keep getting "access denied" messages!
A. This is a known issue, we are currently working to correct this problem.
Thanks for your patience.
Q. How much does it cost to add my child to trachkids.org
A. This site is a free resource for parents of children with tracheostomies..
Q. My child had a trach, but is now decannulated. Can I still create
a page?
A. Yes! We love success stories!
Q. I'm an adult with a tracheostomy, can I add a profile?
A. Adults who have or have had a tracheostomy before their 18th
birthday, my be included on the site.
Q. Why can't I log in?
A. All account have to be manually approved before you can access the site.
This can take 24-48 hours.
Q. Why isn't my child's profile showing up?
A. When you first create a profile the page must be approved by an
administrator.
Q. Why has my child's diagnosis be edited?
A. The administrator may make minor changes to your child's diagnosis in
order to maintain an accurate database. Changes may include removing
abbreviations or correcting spelling.
Q. How do I create a profile?
A. Once you have logged in, click on the "Create content" link in the left
hand column, then click on "TrachKid Profile" to create your child's main
profile.
Q. Why can't I make my child's biography private.
A. Because the purpose of this site is to help parents of children with
tracheostomies to network, as well as educate the general public about what life
is like for a family of a child who is technology dependent. There
are many other free sites for private blogging.
Q. I can't upload any photos!
A. Photos should be in JPG format and no bigger than 640 X 640 Pixels.
Resize your photos before attempting to upload them using a photo editing program such as Adobe's
Photoshop
Elements or Google's Picasa
(free).
Microsoft also has a free tool that makes resizing photos as easy as a right
click: Download Windows Image Resizer
(free).
Q. Can I add more than 5 photos?
A. Due to space limitations, users are limited to 5 photos. However you
can link to outside sites such as Flickr or photobucket in order to share more
photos.
Q. Who owns trachkids.org?
A. The domain is owned by
Twin Enterprises, Inc., which is a non-profit corporation owned by
Cynthia Bissell. However, users
maintain all copy write to the content they add to the site.
Q. Can I use photos or stories from trachkids.org for a publication?
A. You must obtain permission from the child's legal guardian.
Q. I'm not comfortable posting my child's last name, but it's a
required field. What do I do?
A. A last name is helpful in maintaining an alphabetical database,
however, if you are uncomfortable about using your child's last name on the web,
you can skip the last name by using 5 underscores like this: _____ to create a
blank line. That way your child's first name will show up at the end of the
alphabetical list.
Q. Do I have to post my real location?
A. You must include your home country on the registration form. This
information is used for verification purposes. However, only your world
region will be visible to non-members. Members will see your country.
If you live in the US or Canada, you can share your state or province (which
might be helpful for networking). But listing your state and province is
optional.
Need more help?
Have a problems, question, suggestion or comment?
Please email:
info@tracheostomy.com
