Second Tracheostomy.com Pediatric Conference
June 1-3, 2006
St. Louis, Missouri
Doubletree Inn - Westport Plaza
Who should attend?
The Internet's leading tracheostomy resource since 1996, Aaron's
Tracheostomy Page has helped to facilitate networking and support for
parents & caregivers of children with tracheostomies.
Parents, family members, caregivers, nurses, therapists, and anyone interested in learning more about tracheostomies and children.
Featured Speakers:
Robin Cotton, M.D. - Director of the Department of Pediatric Otolaryngology - - Head and Neck Surgery at Children's Hospital Medical Center of Cincinnati. (more info)
David W, Molter M.D. - Assistant Professor, Otolaryngology, St. Louis Children's Hospital, Washington University School of Medicine, St. Louis, Missouri. (more info)
Ronald S. Levin, M.D. - Associate Professor of Pediatrics, Cincinnati Children's Hospital and Medical Center. (more info and article)
Penny Morgan Overgaard, R.N. - Phoenix Children's Hospital, Trach & Airway Program.
Lisa Y. Torres, M.A., CCC-SLP - Passy-Muir Clinical Specialist (more info)
Don Meyer - Director of Sibling Support Project of The Arch of the United States, Speaker, Author and creator of the Sibshop model.
Schedule of Events
Thursday, June 1, 2006
5:00 - 6:00 pm Registration Desk
Open for Check-in Hotel Lobby
6:30 - 8:30 pm Magic House Desserts/Coffee/Soda served
The Magic House, St. Louis Children's Museum, is located
in a three-story Victorian home originally built as a private home in 1901.
The Magic House is dedicated to providing children with hands-on learning
experiences in a creative and stimulating environment.
(offsite event -- Directions to Magic House provided at Registration Desk)
Friday, June 2, 2006
9:00 - 10:00 am Registration
Desk Open for Check-in Hotel Lobby
10:00 - 10:45 am David W. Molter, M.D.
Answers to Frequently Asked Questions of Parents
of the Child With A Tracheostomy
10:45 - 11:30 am Ronald S. Levin, M.D.
Care Coordination of the Child With A Tracheostomy
11:30 - 12:00 pm Q&A Panel
12:00 - 1:30 pm Lunch On your
own
1:30 - 3:30 pm Trach CPR - Penny Overgaard, R.N.
Up-to-date CPR training for families and caregivers of trached children; participants will receive an American Heart Friends and Family CPR card upon completion.
3:30 - 5:00 pm Build-A-Bear Workshop
At Build-A-Bear Workshop* you will personally experience
the joy of creating your very own teddy bear.
6:00 - 10:00 pm Dinner/Gala - Guest Speaker: Don Meyer
An award-winning speaker, author and creator of the Sibshop model, Don Meyer has presented on issues facing families of children with special needs all over the world.
Don Meyer's appearance sponsored by SMITHS MEDICAL, makers of the Bivona Tracheostomy Tube.
Video Presentation
DJ/ Music and Dancing
Saturday June 3, 2006
9:00 - 10:00 am Registration
Desk Open for Check-in Hotel Lobby
10:00 - 12:00 pm Robin Cotton, M.D.
Airway Update: Where We've Been and Where We Are Going
12:00 - 1:30 pm Lunch
On your own
1:30 - 3:00 pm Lisa Torres, M.A., CCC-SLP
Clinical Application of the Passy-Muir Valves
3:30 - 5:00 pm MusikGarten Classes
Brought to us by Lora Glasel, who has been teaching MusikGarten classes for over 5 years in her hometown of Appleton, Wisconsin; Enjoy singing, dancing, bouncing and rocking with your child in a class designed to awaken your child's curiosity about music.
Session 1 45 minutes
Session 2 45 minutes
(your child will be assigned to a session due to limited class capacity).
4:00 - 8:00 pm Carnival/Dinner
Games, Caricaturist, Magician, Balloon Sculptor
Additional Information
There will be a separate room, located nearby, available during all speaking
sessions that will be staffed with volunteers willing to entertain your children
with activities, games, crafts, and videos. PLEASE NOTE: all children with
trachs must be accompanied by a parent or responsible caregiver. The volunteers
staffing the children's room are not responsible for and cannot provide medical
care for any child with a trach.
Hotel Information
The conference will take place at the Doubletree Inn -
Westport Plaza which is located in the heart of St. Louis County.
Reservations can be made by calling the hotel directly at (314) 434-0100
or toll free at 1-866-786-8088. Reservations can also be made online at:
http://doubletree.hilton.com/en/dt/groups/private_groups/stlwpdt_tpc/index.jhtml
When making reservations by telephone, be sure to identify yourself as a
conference participant to receive the group rate of $89 per room (Single
or Double/Maximum 4 people per room). This rate does not include room
and occupancy tax. Note: All reservations must be received by the hotel
by May 15, 2006, to guarantee the group pricing.
The Doubletree Inn - Westport Plaza offers free shuttle to and from St.
Louis International Airport. Please notify them upon making your hotel
reservations that you will need transportation. For more information
about the hotel, please go to www.doubletreewestport.com.
Cancellation Policy
The organizers of this conference reserve the right to cancel, postpone or change any portion of the conference due to any unforeseen circumstances. In the event of cancellation, the conference will refund any registration fees but is not responsible for any related costs, charges or expenses to participants, including cancellations or charges assessed by airlines and travel agencies.
Thank you to
the following sponsors whose support
Made this conference possible
Aaron's
Tracheostomy Page
Celebrating 10 years
1996-2006
How Aaron's Tracheostomy Page came to be:
When Aaron first got his trach, I did not even have internet access and the
world wide web was new and only a small part of the bigger "internet"; most
people did not even know it existed. In 1994, my husband bought a used Tandy
computer and we surfed the web at 14.4 kbs. By 1995, we were active on AOL
message boards and a few listservs. I learned some basic HTML using plain text,
as there wasn't much software for building web pages back then. I started with a
simple homepage and in 1996, I started working on Aaron's Tracheostomy Page.
When I did a search (I think I used AltaVista back then) there was no
information about pediatric tracheostomies, almost nothing about tracheostomies
at all, except maybe a dictionary definition. Taking what I knew from nursing,
what I'd learned caring for Aaron and some basic HTML skills, I started putting
some information online. The site has grown over the years and we are now
celebrating our 10th anniversary!
Cindy Bissell
Statistics:
Average number of hits per day: 6,000 - 7,000
Number of registered Message Board members: 700
Number of messages on the Message Board: 50,000
Number of Listserv members: 200
Number of "Kids with Trachs" bios: 432
What Aaron's Tracheostomy Page means to parents:
"The message board has gotten me through the fear, the anxiety, the mourning,
the anger, the doubt, has brought me huge smiles, fits of laughter, and
sometimes huge tears. I honestly don't know how I would have gotten through it
without all of you....thank God I didn't have to."
Val - Matthew's mom
"You guys are my lifeline and best friends, and I always know someone here will
understand when no one in my "real" life does. I've told tons of moms about it,
nurses, doctors, therapists, anyone and everyone. It is such a valuable part of
my life. I always say, I'd be lost without it."
Deb - Allie's mom
Download Brochure in PDF format
