 |
 |
 |
|
|||||||
| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
 |
|
|
Thread Tools | Display Modes |
|
#1
10-07-2006, 08:58 PM
|
||||
|
||||
Well Alex is famous for desating at night, but he caught a cold at the begining of the week and Wednesday night he couldn't keep his sats up at all. So we got admited Thursday and we are still here! They are discussing sending him home on c-pap. This is going to be a long winter... I hope everyone else is feeling better!
__________________
Maureen- Mom to Alex born at 26 weeks (5/9/2005), O2 dependent at night, BPD, 100% Subglottic Stenosis. One failed CTR January 2008 awaiting an LTP in July 2008. 
|
|
#2
10-07-2006, 09:56 PM
|
||||
|
||||
|
Get better soon Alex.
 Trina
__________________
mommy to Jacob(5) Hannah(2y)birth Asphyxia,GERD,deaf, fundo 5/04and GT,trach 9/04,fundo redo11/04 and cochlear implant, and BIG Decanned 8/14/06 and new baby MacKenzie (1)
|
|
#3
10-07-2006, 09:58 PM
|
||||
|
||||
|
I hope Alex is feeling soon!
Annette
__________________
Annette, mom to Ashley born May 13/03, pfeiffer syndrome type 2, cloverleaf skull, g-tube, fundo, shunt, dev. delay, seizures, untreatable central apnea. Decanned September 3/09!!! Also mom to Mitchell born Feb 27/08, perfectly healthy. They've made my life complete.   
|
|
#4
10-08-2006, 08:55 AM
|
||||
|
||||
|
Hope Alex is feeling better soon
 That's always the way Sam goes too, he just struggles with his sats until it is unsafe for us to increase his O2 any more at home. The sick season is certainly starting early this year..Julie
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
|
|
#5
10-08-2006, 09:27 AM
|
||||
|
||||
|
I am so sorry he is sick
__________________
LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01) EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY 
|
|
#7
10-09-2006, 12:43 AM
|
||||
|
||||
|
I hope Alex is feeling better soon
__________________
 Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
|
|
#8
10-09-2006, 04:55 AM
|
|||
|
|||
|
Hopefully you guys will get to go home soon. Madisyn desats when she is sick and has to be put on Bipap when she is in the hospital.
|
|
«
Previous Thread
|
Next Thread
»
| Thread Tools | |
| Display Modes | |
Linear Mode
|
|
All times are GMT -5. The time now is 03:39 PM.