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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
09-25-2006, 05:42 PM
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She just reached up, grabbed the cow toy on the chair bar and pulled it down!!!! It makes music when she does it!
YAY!!! This is one of her goals for OT!
__________________
Trish PROUD Mama to TWO 26 wkrs 1055 g- Olivia Forever 7, trached for 6.5 yrs, gtube, iv port, BPD, Hydro/VA Shunt, Epilepsy, CP, Fought Hepatoblastoma for 28 months 688 g- Nathaniel is my bright 10.5yo 
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#2
09-25-2006, 05:51 PM
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Sounds like Ella's old chair, I loved it. I am so happy for olivia
 What a big girl. She is such an incredible miracle, and I feel so blessed to even get to "know" her a little bit. She is going to change the world that one, one cow pull at a time
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LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01) EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY 
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#3
09-25-2006, 06:08 PM
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Yippee! What a big girl!
__________________
Kristy Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
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#4
09-25-2006, 06:21 PM
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Cool!! Way to go Livi
__________________
 Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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#5
09-25-2006, 06:49 PM
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Excellent accomplishment Livi!
Thanks for sharing it with us Mommy! I love to hear about it when one of our little ones does something new and wonderful 
__________________
Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11. Photography website: http://pricelessmemoriesphoto.com/ 
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#7
09-26-2006, 12:30 PM
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WooHoo!!
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#8
09-26-2006, 12:30 PM
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It's all of those baby steps that lead to future leader of the nation. That is really great.....I love those moments.
Kellyxo
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Kelly, mother of , Indira 6 (trach and g-tube)[/color] [/color]and Max 4. [/color]When there is no  you are the reason I bound out of bed. Thank-you for giving me life! See Indie- http://www.tracheostomy.com/trachkids/kids12.htm
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#9
09-26-2006, 05:59 PM
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Awww, WOW Livi!! Way to go sweetheart.
 That's such good news - thanks for sharing!Lots of love, Kate XXXX
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Kate, Mum to: Angus 27/6/04-24/11/10 My star of a boy who was vent and O2 dependent 24/7. One of the loveliest kids you could ever have met. Pics and vids Blog Juliet 28/9/99 perfectly healthy and beautiful Alasdair 28/9/10 Delightful, easy-going boy I'm a 'dawk'  
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#10
09-26-2006, 11:49 PM
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Yeah!!!! Keep them on their toes!!!!
__________________
Sabrina, mother to Will born a 24 weeker May 4, 2005. History of BPD, Trach August 2005, Gtube October 2005, ROP, Single Stage LTP 1/25/07 and trach free!!!! The happiest little boy who is the center of my world!!
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