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Old 09-22-2006, 01:39 PM
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bex271 bex271 is offline
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We finally found an ortho that I can deal with. He ACUTALLY examined jonah. He's ordering some x-rays and we don't have to see him again till january. Said no surgeries right now i guess third times a charm. And it's a state funded program so what ever jonah will need chair/brace wise it'll be covered till his 21st birthday. thanks for letting me share our good find

becca
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becca, mom to jonah dob 11-25-03.treacher collins extremely delayed but the light of our lives and very determined to prove everyone wrong especially the doctors.
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Old 09-22-2006, 03:36 PM
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Glad you found a good doc You deserve it!
mandi
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Mandi mom to Alissa Former 24weeker born 2-25-04 trached May 04. Had Ltp 11-28-05 Now trach free.
Also mom to Makayla age 8 and summer2
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Old 09-22-2006, 05:13 PM
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Sometimes it takes FOREVER to find a Doc that will listen to what you want/need or who will actually take an interest and pay attention! Yay for you guys! You hooked a big fish...don't let him go!

Sarah
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Sarah, Mommy to Malakai (9), Aubrey (8), and Keturah (6) trach, vent, Chiari I, BVCP, CCHS

http://s109.photobucket.com/albums/n73/lovemymak/

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Old 09-22-2006, 05:14 PM
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Sounds like a good doctor. This is exactly what you (and Jonah of course) deserve.

Love Julie
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
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