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  #1  
Old 09-02-2006, 10:38 PM
Jen3 Jen3 is offline
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Hello. Â*Sorry I don't post that often anymore. Â*I am still on here everyday and reading the post. Â*I am trying to get back into the swing of things and will be hopefully able to post more.

OK...You all know Raegan was decanned the end of April. Â*We just went back for our 3 month check and they said her airway looks great and they don't have to see us for 6 MONTHS!!!! Â*Her gentilia was scoped as well and they are wanting to close her vescostomy in the next few months and they think that we will have to cath her 4xday for a while then tapper off to where hopefully Â* she will be able to pee on her own!! Â*So it was a good visit to Cincinnati.

When the trach came out she was very soft spoken and did not really understand how to use her voice. Â*She could never use the PMV so it was a whole new world for her. Â*

Fast forward to now.....we call her Chatty Cathy. Â*OMG she is a talker. Â*Obvisouly she is in speech but just to hear her say words is amazing. Â*She is a pretty average 3 year old. Â*She is 2 inches shy of 3 feet tall and she is weighing 25 pounds now.

I also got some help I needed. Â*I finally found a doctor who would listen to me about my problems. Â*I have been diganoised with severe insomnia and depression. Â*Started taking meds a few months ago and am now feeling better. Â*That is part of the reason I have not been on here that much. Â*I was to busy laying in bed all day! Â*Sad I know Â* Â* but now I feel like a new person!! for drugs!! Â*

Anyway for anyone who wondered where we were you got your answers. Â*It also took me a while to post all this because I was not wanting people to not remember us and then I would feel like a Â*

Hope all is well with you all.



Jen[b]

ps. my topic post was supposed to say long over due!!! Duh
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Mom to Raegan age 4..former 26 weeker. 1lb 10 oz. Trach, Mickey Button, Vestocostomy..26 surgeries to date. Single stage LTP done April 24,2006. And Thanks to Dr. Cotton we are TRACH FREE!!!!!!!!

Also mom to Alexis, age 10 and Corbin, age 6
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Old 09-03-2006, 06:45 AM
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cariaad cariaad is offline
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Jen, glad to hear things are looking up. I can say from personal experience that getting the right medication for depression and sleep problems can give you a new lease on life. I hoppe you continue to post! Deb
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24 weeker now almost 11 years old and in third grade!
trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08
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Old 09-03-2006, 08:40 AM
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Missed you guys! Glad to hear things are looking up
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Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11.
Photography website: http://pricelessmemoriesphoto.com/

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Old 09-03-2006, 09:55 AM
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alissafaith's mom alissafaith's mom is offline
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Glad things are going well! and glad you had a great visit in cinci!!!!!!!!!
mandi
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Mandi mom to Alissa Former 24weeker born 2-25-04 trached May 04. Had Ltp 11-28-05 Now trach free.
Also mom to Makayla age 8 and summer2
www.caringbridge.org/visit/alissa
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Old 09-03-2006, 10:08 AM
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sandra sandra is offline
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Of course, we remember you guys!

I am glad you got good news and are feeling better yourself!
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.


B & C are surviving triplets. Brooke survived for 1 month.
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Old 09-03-2006, 12:30 PM
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Melisande Melisande is offline
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Sounds like things are much better! Thanks for sharing!!!
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad!

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Old 09-03-2006, 12:31 PM
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Whitney Whitney is offline
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I am glad everything is going so well for Raegan. It is wonderful that you are feeling great too. I have had my share of depression and it can really bring you down. Keep taking care of yourself Jen!!

We wouldn't forget you
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Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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Old 09-03-2006, 12:52 PM
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JWorthington JWorthington is offline
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Glad to hear things are going ok for Raegan. And glad that you are getting some help yourself. Here's to a bright future for both of you

Love Julie
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
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Old 09-03-2006, 05:00 PM
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Lizzykewlness Lizzykewlness is offline
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Awesome update, very glad you shared it.

Sarah
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~>momma to Luke (3/04), subglottic stenosis (trached 3/04-5/07), Malachi (2/06) & Isaac (1/08)<~

3-2007
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Old 09-03-2006, 07:51 PM
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Jen

Sorry i haven't called in awhile. I&quot;ve been a tad busy with school starting. But I think we all know how that goes.

Good to hear you all are doing good.

I&quot;m still waiting on the approval for the dentist. I talked with them last week and they're goinna call Medicaid and see what the hold up is. So hopefully in a couple weeks we'll be done. Keep your fingers crossed.


I&quot;ll try and call this week.
My girls go back to school on Tuesday. Yipee!!!!

Robin
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Former 24 weeker, decannulated 2 times, retrached Feb 2006. Mom to 4 crazy kids: Owen 8, Hanna, Bailey and Olivia 6 yr old triplets. Always striving for the perfect airway! [/url]
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