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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
08-25-2006, 01:43 PM
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I've noticed for awhile that the tips of Riley's fingers and her fingernails look... different. So, the neonatologist was giving me the daily update and said the geneticist has determined she has "clubbed" fingers and that this is either a product of her pulmonary hypertension/lung disease/vent dependency or is a possible indication of cystic fibrosis. They did a sweat test today but wouldn't have they been able to tell if she had CF already? She's almost 5 months old. Is it more than likely a result of her heart/lung issues?
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Teri~~mom to Riley Roo 3/29/06- LCDH, vent, trach, g-tube & Elly, Kaeleigh, Avery www.caringbridge.org/visit/rileyjaneprochaska 
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#2
08-25-2006, 02:43 PM
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That is so funny you said "clubbed fingers". Kara is almost 2 1/2 and for the very first time I was told yesterday that Kara has clubbed fingers. They have been like this since she was born but no one ever told me what it was. Here is a picture of Kara's fingers.
Rachel  
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Rachel mama to Kara Beth April 9, 2004 Laryngomalacia, High pallet, FINALLY vent free (8/05), Precious Smiley Princess who will tell you like it is!!!! & Timothy Sept 2008 Healthy as could be Also expecting again due in June 2010  
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#3
08-25-2006, 03:21 PM
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Oh wow, that could be Riley's hand! I'll not worry about CF then until I am told differently. Thanks for the picture, especially since Kara is in the hospital. I hope she feels better soon!
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Teri~~mom to Riley Roo 3/29/06- LCDH, vent, trach, g-tube & Elly, Kaeleigh, Avery www.caringbridge.org/visit/rileyjaneprochaska
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#4
08-25-2006, 04:20 PM
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Mya's fingers were clubbed also. But after she had her heart surgery, they started to change shape and have a more typical appearance now. Tristan's were clubbed until his 2nd birthday, but no sign of it now. I don't really know for sure, can't get a good look. He's the fastest kid around- acts like he's on meth or something!
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Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11. Photography website: http://pricelessmemoriesphoto.com/ 
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#5
08-25-2006, 08:51 PM
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I hope that it is nothing to worry about. I am sure that her little fingers are as cute as Kara Beths are.
Teresa
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Tess-mom to Abigail 9 yrs old. DX Central Congenital Hypoventilation Syndrome and has a pace maker. Abby was decannulated April 15, 2010. She now sleeps with a V-pap machine and mask. Also mom to a fiesty red head named Olivia who is 6. I am the happiest mommy right now, all is good.
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