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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
02-21-2003, 07:16 PM
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Hi all
We just got home from CHOP where we had our pre-op for Nicholas's surgery next week. While we were there we were informed that our very good friend Ty was not doing well. His extended family had been called in from Mississippi and had just arrived as we were visiting. Nicholas and Ty shared a room together for 11 weeks, if it weren't for Ty and his mother Val, I'm not sure how I would have made it through some of our toughest times. Ty is 16 months old and has HLHS and was trached over Thanksgiving. Please send out your prayers for this beautiful family (Val, Bill and Jackson 4yr. old brother). Thanks Carrie
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 Our little miracle, Nicholas Scott born 08/09/02; CHARGE Syndrome, bilateral cleft lip/palate, congenital heart disease, trach and g-tube, hearing aids. Decanulated! 
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#2
02-21-2003, 07:56 PM
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Prayers are heading their way. What is HLHS?
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Lisa- mom of John Patrick age 9 and formerly trached Joel age 4- DECANNULATED JANUARY 25, 2004!!! Foster mom to Sierra born July 16, 2005- CHARGE syndrome, grade IV kidney reflux, severe hearing loss, trach & gtube for laryngeal cleft and chronic aspiration, gorgeous blue eyes
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#3
02-22-2003, 01:54 PM
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Message received, prayers sent up! Â*
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