Probably the most difficult thing about having a child with a trach is the isolation you feel. You have found the best place to get support and find new friends. I have actually never seen another child with a trach. It seems so rare and so scary and there is little to no data out there, no definite prognosis. It seems so overwhelming at times, doesn't it? I'm sorry, but my child is 11 months old, but I can offer my friendship and support! We all have the same fears and dread and anxiety. There are several patients who are older with trachs who post, as well as a nurse, named Rose, who has worked with several school aged children. She actually works for the school system and could be a great resource for you. Look her up in the members. Until then, we're all here for you! Sue 
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Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious
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04-12-2002, 02:28 PM
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