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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
08-04-2006, 11:14 PM
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When I received my monthly supplies the other day, I got an extra Passy. It's free to who ever wants it.
Brand New, Package has never been opened, and it's Purple. My son already has 2 clear one's. Kee Kee's mom 
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#2
08-04-2006, 11:18 PM
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Can we please have it, Maddy wants a purple one and they only sent us clear!!!??? Also we only have one!!
Love Kris 
__________________
Kris 3/24-26wk twin girls born 7/01 at 1lb15 & 1lb13. Rynn-trach. malacia, Grade 1 SGS, reflux, asthma, autism(high funct. Asperger's) & epilepsy. Madelyn-severe trach. malacia, Grade 3 SGS(Trached 10/21/01 to 11/20/11 DECANNED) ,PVL,BPD,CP,submucousal cleft,reflux, G-button(12/01), nissen X2, off vent '03.Two of the most Perfect Princesses!  !!
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#3
08-04-2006, 11:29 PM
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Passy Muir Valve is gone!
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#4
08-04-2006, 11:36 PM
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That's funny, we only get purple-Dme tells us they don't make clear. I'll trade someone for a brand-new purple for a brand-new clear!
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!  The Birthday Boys by TwinTransfusion, on Flickr
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#5
08-04-2006, 11:43 PM
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Thank you KeeKee's Mom!!!! Maddy will love that!!!!
Kerry, if we ever get another passey,  , since it has been on order for three months now, I will gladly swap for purple!!!Love Kris
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Kris 3/24-26wk twin girls born 7/01 at 1lb15 & 1lb13. Rynn-trach. malacia, Grade 1 SGS, reflux, asthma, autism(high funct. Asperger's) & epilepsy. Madelyn-severe trach. malacia, Grade 3 SGS(Trached 10/21/01 to 11/20/11 DECANNED) ,PVL,BPD,CP,submucousal cleft,reflux, G-button(12/01), nissen X2, off vent '03.Two of the most Perfect Princesses! !!
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#6
08-05-2006, 10:02 AM
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Why is the PMV on backorder? We're getting ours in a timely manner. Tell them to GET WITH THE PROGRAM!
Who else gets clear who would trade? (don't worry Kris, I have two kids that use them so I have quite a few purples)
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo! The Birthday Boys by TwinTransfusion, on Flickr
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