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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
07-15-2006, 08:27 PM
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Just wanted to update you all on Kayla. We are finally home after being in Cincinnati for 6 weeks of hospitalizations, scopes, overnight observations, sitting at the hotel and waiting,etc. We did get to go to King's Island and she had her picture taken with Spongebob but Jimmy Neutron scared the crap out of her.
 It feels great to be home but we have to go back to Cincy in 2 weeks for a follow-up scope. They dilated her after the last scope and kept her overnight but said everything looked good. Thank you all for the messages and prayers.   
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#2
07-15-2006, 08:54 PM
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I hope everything continues to go well.
 Annette
__________________
Annette, mom to Ashley born May 13/03, pfeiffer syndrome type 2, cloverleaf skull, g-tube, fundo, shunt, dev. delay, seizures, untreatable central apnea. Decanned September 3/09!!! Also mom to Mitchell born Feb 27/08, perfectly healthy. They've made my life complete.   
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#3
07-15-2006, 09:21 PM
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I hope things continue to go well for her!
__________________
Kristy Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
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#4
07-16-2006, 08:02 AM
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Glad to hear she's home
 I think Jimmy Neutron would scare me too!  Julie
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#5
07-16-2006, 11:36 AM
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So glad to hear you are home...I hope that you have more good news in 2 weeks.
Melissa
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Melissa, mom to Mary Carolyn-born full term March 29th 2005. Â*Subglottic hemangeoma-resected 6/2005 - Trach 8/2005. Single stage LTP-7/5/06 and decannulated-Â*Love her to death!
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#6
07-16-2006, 02:43 PM
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Glad you're home...home you get good news when you return to Cinci!!!
__________________
 ~Marcie~Mom to Nate (8); trached at 5 wks due to chronic aspiration; CP, hypoglycemia (controlled with diet and meds), seizures, g-tube fed; Also mom to Brianna (16), Allison (14) and Delaney (3) My blog Life Is Good
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