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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

06-28-2006, 03:49 PM
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Senior Member
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Join Date: Oct 2005
Location: Riverside, ca
Posts: 1,225
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I'm telling myself all things happen for a reason.
Ok what do you guys think I should do
Stick with the competent Dr. with the horrible bed side manner (which is really wearing me down) or
Switch to competent Dr. who is really nice but it'll take some work to switch to him.
gosh written out it seems so easy to answer! I'm nervous about it. Plus Dr. cotton has never heard of either of them and never suggested to me any in my area he does know. I'm supper stressed, and feel so guilty about it because plenty of you guys have so much more to deal with than I do.
I'm so glad to have all of you as friends
thx,
Sarah
__________________
~>momma to Luke (3/04), subglottic stenosis (trached 3/04-5/07), Malachi (2/06) & Isaac (1/08)<~
 3-2007
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06-28-2006, 04:03 PM
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Senior Member
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Join Date: Oct 2005
Location: Wv
Posts: 1,277
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Sarah go with what your heart says to do if the other Doc is better maybe it is worth the trouble of switching good luck in which ever you decide
mandi
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Mandi mom to Alissa Former 24weeker born 2-25-04 trached May 04. Had Ltp 11-28-05 Now trach free.
Also mom to Makayla age 8 and summer2
www.caringbridge.org/visit/alissa
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06-28-2006, 05:37 PM
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Mentor
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Join Date: Jul 2004
Location: USA
Posts: 7,467
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S- If Luke might be facing reconstruction then I would go to a specialist that is recommended by Dr. Cotton- even if you have to travel a couple of hours.
BUT- any local <but competant!> ENT can scope Luke for the time being, and see whats going on down there to get an idea. Any decent ENT would refer you to a look into a specialist for reconstruction if it's needed.
Are you seeing an ENT that is strictly peds? Do they have a lot of trach kids in their practice?
Ok, the question wasn't whether your doc was competant, duh. Basically I am saying, how bad is the bedside manner? (I once ditched a good ENT because a sarcastic jerk).
__________________
Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!
The Birthday Boys by TwinTransfusion, on Flickr
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06-28-2006, 06:15 PM
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Senior Member
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Join Date: Oct 2005
Location: Riverside, ca
Posts: 1,225
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He is strictly peds, and he sees a lot of patients. He is the kind of guy that treates you like you're a bad person, and is very full of himself. Likes to feel smarter by demeaning you (at least that's the impression I've gotten) and his nurse is the same way. I think what we'll do is have him scope Luke but move elsewhere if he needs the LTP. I'm not going to see him personally again though....  he made me cry today. David will go with my Mom when luke gets the scope.
Sarah
__________________
~>momma to Luke (3/04), subglottic stenosis (trached 3/04-5/07), Malachi (2/06) & Isaac (1/08)<~
 3-2007
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06-28-2006, 09:25 PM
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Mentor
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Join Date: Jul 2004
Location: USA
Posts: 7,467
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You should write a letter to him about how he made you feel, and that it's a shame he's placing extra stress on an already stressful situation. It boils down to ignornace. Not even taking into consideration how his tone affects the parents, that is certainly annoying. I would write a letter to him, because if he's doing it to you, then he does it to all those other parents as well.
__________________
Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!
The Birthday Boys by TwinTransfusion, on Flickr
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06-28-2006, 10:10 PM
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Senior Member
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Join Date: Nov 2005
Location: Marlton NJ
Posts: 1,029
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Sorry your dr. stinks!
Why did they reschedule?
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06-28-2006, 10:47 PM
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Administrator
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Join Date: May 2002
Location: Phoenix, Arizona
Posts: 7,320
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Sarah,
It really makes me angry that you have to put up with such a jerk. I agree 100% with Kerry, if you aren't comfortable telling him in person, you should write a letter letting him know how inappropriate and unacceptable his behavior is. Don't ever forget that you are the customer and he needs to be reminded of that. I'd hate for you to stay away from Luke's next bronch because of this guy. Don't let him intimidate you. I truly believe most doctors would be appalled at how you are being treated by this doc.
I'm sorry you have to deal with a difficult doc on top of everything else.

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06-29-2006, 05:37 AM
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Senior Member
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Join Date: Dec 2003
Location: Ohio
Posts: 2,990
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Sarah,
His attitude stinks! I agree, write him a letter. Email him. You should not have to stay away during Luke's scope.
Did Dr. Cotton provide you with any names? If not, email him back. I'm sure he'll give you some names "around" you, but it might mean traveling a few hours.
I hate dealing with mean doctors. However, I don't like confronting them either. But there have been a few occasions where I was living in "temporary insanity" and I let them have it. A person can only handle so much and then  ...and you just break.
If it is worth the stress of switching, go for it!!!
Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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06-29-2006, 05:45 AM
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Senior Member
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Join Date: Dec 2004
Location: England
Posts: 10,932
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I agree, write him a letter. You have enough to deal with, I'd let him have it. I would definitely consider switching even if you do have to travel, you need someone you can trust.
 Julie
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
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06-29-2006, 03:43 PM
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Senior Member
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Join Date: Oct 2005
Location: Riverside, ca
Posts: 1,225
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What happened was we had a mix up on when he was last supposed to drink, they never gave me written instructions and he hasn't gotten a scope for a year. He totally chewed me out acting like I did it on purpose.
I did tell him he didn't have to be so mean while crying. He thought I was trying to put the blame on him and said so. I said I'm so sorry while sobing and said it was totally my fault. And my Mother Inlaw said he needed a better bedside manner right to his face, that he shouldn't have acted the way he did. Woo hoo for mother in law, she stuck up for me. That makes it easier now. But at the time I cryed for an hr or so (feeling like I was going to throw up). I probably wouldn't have reacted so horribly but I'm going through a very low point depression-wise. Now every time Luke askes for juice I get a stomach ache and my chest feels all tight.
His new scope is scheduled for July 17th 1:30pm. I doubt I'll go, it'll make it easier anyway because I have to feed Malachi, and it's better not to have him at a hospital anyway.
-sarah
__________________
~>momma to Luke (3/04), subglottic stenosis (trached 3/04-5/07), Malachi (2/06) & Isaac (1/08)<~
 3-2007
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