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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
06-20-2006, 04:37 PM
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Well we are at our Ent appointment and the doctor says, you told me Luke didn't have relfux but the results from the EGD says he does...he says this isn't trivial you know...And I'm going wait! what? the gastroenterologist (sp?) said he didn't have reflux. Turns out the biopsy did show signs of reflux. I guess the nurse left a message on voicemail for us. We never got it. He had the EGD in nov 2005, and we find out Luke has reflux today from our ENT. Ug. So this complicates things...we have to now find out what to do about the reflux. Appoinment tomorrow for that...fun fun.
Well we still have the scope on the 28th. If there isn't much scar tissue he might just laser it out and apply some mitomiticin (sp?), and maybe we wont have to worry about the LTP. I'm praying for good news next week.  Sarah
__________________
~>momma to Luke (3/04), subglottic stenosis (trached 3/04-5/07), Malachi (2/06) & Isaac (1/08)<~  3-2007
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#2
06-20-2006, 07:17 PM
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 hmm...are they thinking better late than never? Does the word liability mean anything? Reminds me of our neurosurgeon's office calling me 3 weeks afterwards telling me Alex's ventricles were somewhat enlarged on the CT.. Ok I am sure you are frustrated enough and don't need it from me... I hope the scope goes well and that the laser is the only thing needed... 
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 Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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#3
06-20-2006, 09:06 PM
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I will be
 Luke's scope goes well and no surgery is needed!!
__________________
Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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#4
06-20-2006, 09:37 PM
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I suspect it is not awful reflux b/c you would know.....we have the awful reflux that scars everything and trust me we are aware of it.......all the time.
I have a feeling it will work out! Fingers Crossed! K :-)
__________________
Aaron James, born at 31 weeks, multiple airway issues www.caringbridge.com/visit/aaronjameskunkle All my love always............. & Paige Kristina 7/14/07 my wonderful reminder that life has to go on.....
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#5
06-21-2006, 11:29 AM
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It can't be too severe or you would have realised. Good luck with the scope
Julie
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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