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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
03-05-2002, 11:45 AM
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I have found that when I put morgan on the humidification at night it never stays on her neck. I have tried cutting the collar shorter so it is closer to her trach but, ever morning it is wrapped around her and isn't even close to being on her trach. The doctor's say not to use a humidivent while they sleep and I haven't but, to me what is the difference. The collor never stays on her trach either. Anyone have any idea's on how to keep it on the trach or any comments on the situation.
 
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#2
03-06-2002, 12:02 PM
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I found that the stiffness of the aerosol tubing tends to push the mask off. We added a very flexible rubber extension from the aerosol tubing to the trach mask. This helped a lot. I believe they use the rubber tubing on ventilators, so if you know a respiratory therapist or ICU nurse, someone like that can get it for you. Not sure if this is something the medical supply vender can get, but maybe. We had a home care nurse who also worked in the NICU. She got us a couple of short pieces (maybe 6 inch or so) and we washed them and reused them. They lasted for years.
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Cindy - Mom to Aaron (age 19), trached for 4 years, subglottic stenosis, ADHD, learning disability, former 26 week preemie and identical twin to Eric (age 19), spastic quad CP, moderate MR, seizure disorder; Anthony (age 19), spastic quad CP, g-tube, seizure disorder, cortical vision impairment, profound MR; and Natasha (age 6) CP, cortical blindness, seizure disorder, profound MR, shunt, g-tube.  Home Page: http://www.bissells.com
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#3
03-07-2002, 03:39 PM
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We are very lucky that Alli doesn't need a lot of humidification. We were very upset by the trach mask method-her clothes ended up wet in back and no humidity on her trach directly and also we had to "unwrap" her from the hosing several times a night as she is a very active sleeper. Now we use an HME and room humidiifier. We only use the compressor set when she needs O2 (like after a surgery or hospital stay). You might try this if the humidity needs are not high. Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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#4
08-21-2002, 09:05 PM
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Sean has the same problem with the rolling around at night, and the mask ending up in the back. My supply company sent us an adult mask by mistake once. I ended up needing an extra mask while he was sick and tried it. I found that even if the mask turns he is still getting mist due to the size of the mask. The mask still ends up in back every once in a while, but not nearly as often. I think I'll try the trach tie idea also. Kim
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