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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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Old 05-21-2006, 11:19 AM
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Kristy,
Â* Â* Â* Â* Â*Hope all goes well with Nathans LTP tommarow! He will be in my prayers Â*I hope all goes well and you are home and trach free soon!
mandi
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Mandi mom to Alissa Former 24weeker born 2-25-04 trached May 04. Had Ltp 11-28-05 Now trach free.
Also mom to Makayla age 8 and summer2
www.caringbridge.org/visit/alissa
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Old 05-21-2006, 11:25 AM
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Good Luck!!!!

Love Kris
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Kris 3/24-26wk twin girls born 7/01 at 1lb15 & 1lb13. Rynn-trach. malacia, Grade 1 SGS, reflux, asthma, autism(high funct. Asperger's) & epilepsy. Madelyn-severe trach. malacia, Grade 3 SGS(Trached 10/21/01 to 11/20/11 DECANNED) ,PVL,BPD,CP,submucousal cleft,reflux, G-button(12/01), nissen X2, off vent '03.Two of the most Perfect Princesses! !!
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Old 05-21-2006, 11:28 AM
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God bless!

-Sarah
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~>momma to Luke (3/04), subglottic stenosis (trached 3/04-5/07), Malachi (2/06) & Isaac (1/08)<~

3-2007
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Old 05-21-2006, 11:33 AM
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Mom to Adison Trached 11-10-05 Decaned 08-19-06



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Old 05-21-2006, 11:41 AM
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I will be keeping you and Nathan close in my thoughts tomorrow Kristy.
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!

The Birthday Boys by TwinTransfusion, on Flickr
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Old 05-21-2006, 12:14 PM
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Good luck Kristy. You'll be in my thoughts and prayers. Please update when you can.
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10)
Jack's Journey and Then Some
TouchStones of Compassionate Care
The Willow Tree Foundation


“Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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Old 05-21-2006, 12:18 PM
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Good luck tomorrow Nathan!!!!!!!!!!!



Annette
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Annette, mom to Ashley born May 13/03, pfeiffer syndrome type 2, cloverleaf skull, g-tube, fundo, shunt, dev. delay, seizures, untreatable central apnea. Decanned September 3/09!!! Also mom to Mitchell born Feb 27/08, perfectly healthy. They've made my life complete.


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Old 05-21-2006, 12:25 PM
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Many prayers and hugs for Nathan and Kristy! Hoping all goes well!
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Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11.
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Old 05-21-2006, 12:56 PM
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I hope everything goes wonderful!
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.


B & C are surviving triplets. Brooke survived for 1 month.
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Old 05-21-2006, 02:30 PM
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good luck


becca
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becca, mom to jonah dob 11-25-03.treacher collins extremely delayed but the light of our lives and very determined to prove everyone wrong especially the doctors.
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