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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

05-03-2006, 05:20 PM
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Member
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Join Date: Jan 2006
Location: Memphis,TN(currently) Â New Orlenas,LA (hometown)
Posts: 266
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I just need to vent...
Mason was suppose to get his g-tube on Monday...FINALLY. Well this weekend his secretions started looking a little yellow but he had no fever, did well with feeds, and was fine. So we go in on Monday and mentioned it to the surgeons and they thought maybe we should wait incase mason has something (which he always has something). And of course Ronnie jumps on the band wagon and all of a sudden I get out voted. Well, turns out the boy does have something...guess what it is. Another one of those damn random infections you get from being in the hospital all the time. I look it up on the internet and it says the peak colonization age in children is two. ANOTHER INFECTION...THAT HAS PROBABLY COLONIZED. Mason is always getting something and they always say "Oh this is something we often see in kids who are chronically ill" or "you get that when you spend a lot of time in the hospital, I probably have it to". I really wanted him to get that g-tube because trying to get that tape of his face for his ng tube is fankly my idea of hell!!! I hate making him cry and he fights and throws up!!!!!!!!!!!!!! I know it is better to wait on surgery if you have an infection but I feel like these damn bacterias are personally out to get me!! Is Mason the only one who gets these random things???? I hate it!
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D'Anna mom to 25weeker Mason (BPD, Treacheamalacia, Laryngomalacia, PDA Ligation, Trached 10/04, liver cancer diagnosed 08/05, Duradoma, in remission 03/06)
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05-03-2006, 05:27 PM
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Mentor
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Join Date: Jan 2005
Location: Glasgow, Scotland
Posts: 4,109
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You sound like you really need a  or maybe a large  , or maybe just a sledge-hammer for Ronnie? Just kidding, but it conjures up an amusing image.
I'm sure Mason isn't alone in picking up all sorts of infections in hospital - they're nasty places full of sick people with different bugs....oh, hang on, Angus was one of those.....but you know what I mean. I don't know if it will all work out fine, but Mason has fought through some pretty impressive odds so he must really want to be here. I'd bet on him rather than the bugs TBH.
I hope that he gets his g-tube soon and that it makes life far easier for him and you. It is lovely to see them with no tape on their faces, and not having to replace that NG which they keep yanking out because they hate it, is wonderful!!
Hang in there babes,
Kate
XXXX
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Kate,
Mum to:
Angus 27/6/04-24/11/10 My star of a boy who was vent and O2 dependent 24/7. One of the loveliest kids you could ever have met.
Pics and vids
Blog
Juliet 28/9/99 perfectly healthy and beautiful
Alasdair 28/9/10 Delightful, easy-going boy
I'm a 'dawk'
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05-03-2006, 06:49 PM
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Senior Member
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Join Date: Nov 2003
Location: Texas, US
Posts: 5,835
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I'm sorry that you are having to wait. I hope Mason is better soon and the g-tube is in place before you know it! 
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.
B & C are surviving triplets. Brooke survived for 1 month.
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05-03-2006, 07:11 PM
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Member
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Join Date: Feb 2006
Location: Pa
Posts: 163
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 i hope he can get his tube in real soon. i know what you mean about infections. seems like everytime kaylee comes home its some new infection she picks up while in there. i am getting paranoid now. like my house is one big giant sespool of bacteria. i got stupid MRSA. i thought it was spider bites but now i researched it and it looks the same as online. damn it. now i keep thinking about my boys, what will they get. i came out of shower and Max had red mark on his lip, my sister said it was probably a toy hit his face. but i keep thinking infection.  ok, now off my rant. good luck
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Kimmie, mommy to Bobby , Max 9/28/04 and Kaylee 10/16/05 Â trached 2/7/06
laryngomalicia, subglotic stenosis. cleft palate, PDA , VSD,microtia of left ear. and a cute little extra toe that got removed sept 06
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05-03-2006, 09:42 PM
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Senior Member
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Join Date: Oct 2005
Location: St. Louis, MO
Posts: 2,823
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I hope this new infection clears up soon, and he can have his surgery. Hang in there! Lots of hugs. 
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Kristy
Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
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05-04-2006, 10:41 AM
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Senior Member
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Join Date: Dec 2004
Location: England
Posts: 10,932
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Hope he's soon over this infection and can get his g-tube, it is so much better than the NG.
 Julie
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
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05-04-2006, 06:54 PM
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Mentor
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Join Date: Aug 2005
Location: Canada
Posts: 4,648
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Crap. D'Anna, my heart goes out to you. I hope that he gets over this likety split and you can get that G-tube.
Lots of love,
Teresa
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Tess-mom to Abigail 9 yrs old. DX Central Congenital Hypoventilation Syndrome and has a pace maker. Abby was decannulated April 15, 2010. She now sleeps with a V-pap machine and mask. Also mom to a fiesty red head named Olivia who is 6. I am the happiest mommy right now, all is good.
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