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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
| View Poll Results: How many medications? - Daily medications | |||
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13 | 20.97% |
| 2-3 |
  
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19 | 30.65% |
| 4-5 |
  
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13 | 20.97% |
| 6 or more |
  
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17 | 27.42% |
| Voters: 62. You may not vote on this poll | |||
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#1
04-26-2006, 02:40 PM
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I am not sure how many others have to give as many medications as I do so I thought this might be a good poll
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Dee, Mother of Ericka. D.O.B. 12/11/03...preemie at 27 wks gestation, GTube on 07/02/04. Trached 03/22/05Fundoplication/Nissen in 2005. Decanned 10/17/07!!!!!!!!The little hero is the one who melts my heart every day for all her accomplishments. 
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#2
04-26-2006, 02:55 PM
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Just one. Phenebarb to prevent seizures. She used to be on about 3 resp. medicines too but not anymore. Been just one medicine for almost a year now. Oh wait I forgot she gets a flintstone vitamin to does that count?
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LORI--MOM TO ELLA AND EMMA(born 10-16-04)AND DEREK (born 9-13-01) EMMA- CP,TRACHED, G-TUBED DEC 2004 AND VENT DEPEND JUNE '05, CORD ACCIDENT DUE TO MONOCHORIONIC MONOAMNIOTIC TWIN PREGNANCY 
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#3
04-26-2006, 02:59 PM
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Angus used to get captopril, omeprazole, domperidone, frusemide and spironolactone. I used to think I would go nuts when he needed an antibiotic as well, along with the fact that he needed tube feeds every 3 hours, but things have settled down considerably to captopril 3 times a day and feeds 4 times a day. Easypeasy!
Lots of love, Kate XXXXX
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Kate, Mum to: Angus 27/6/04-24/11/10 My star of a boy who was vent and O2 dependent 24/7. One of the loveliest kids you could ever have met. Pics and vids Blog Juliet 28/9/99 perfectly healthy and beautiful Alasdair 28/9/10 Delightful, easy-going boy I'm a 'dawk'  
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#4
04-26-2006, 03:03 PM
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 It is a medication sort of. I give Ericka alot of stuff. But they are hopefully going ot be coming to a end when she gets off her vent.
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Dee, Mother of Ericka. D.O.B. 12/11/03...preemie at 27 wks gestation, GTube on 07/02/04. Trached 03/22/05Fundoplication/Nissen in 2005. Decanned 10/17/07!!!!!!!!The little hero is the one who melts my heart every day for all her accomplishments.
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#5
04-26-2006, 06:02 PM
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Okay here goes.
1. Keppra twice daily 2. Dilantin twice daily 3. Phenobarbital once daily 4. Robinul at least twice daily (more if needed) 5. Miralax once daily 6. Pulmocort twice daily 7. Albuterol twice daily 8. Calcium once daily 9. Rhinocort once daily 10. Acetosol once daily Plus feeding five times daily? How would you like to keep all of this straight. It is challenging at times. Amy
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Mother to the most wonderful and beautiful 14 year old precious little man ever!! Also mother to just as equal 9 year old little wild woman.  
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#6
04-26-2006, 06:27 PM
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None. I am very thankfull.
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Tess-mom to Abigail 9 yrs old. DX Central Congenital Hypoventilation Syndrome and has a pace maker. Abby was decannulated April 15, 2010. She now sleeps with a V-pap machine and mask. Also mom to a fiesty red head named Olivia who is 6. I am the happiest mommy right now, all is good.
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#7
04-26-2006, 07:23 PM
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When we came home from the hospital, Brian was on 20 different meds. It was unbelievable. We are down to 4.
Singulair Q 24 Zyrtec Q 24 xopenex Q 4-6 Pulmocort Q 12 So much easier to handle now.
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.  B & C are surviving triplets. Brooke survived for 1 month.
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#8
04-26-2006, 07:40 PM
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Singulair
Zyrtec Prevacid Flowvent Xopenex or Abuterol Nasonex or Flonase and Ceftin at the moment for yellowish discharge.
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Leslie, mother to Chris (12), Chase (3) and Chad (2) I have 3 boys cause I didn't want 4. Chase- X 31 weeker, Trachea Esophageal Fistula, Esophageal Atresia, Pyloric Stenosis, VSD, Pulmonary Stenosis, Severe malacia (90% occlusion)..one failed decann attempt
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#9
04-26-2006, 07:46 PM
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Maddy: multivitamin- one time daily
Â* Â* Â* Â* Â* prevacid-two times daily Â* Â* Â* Â* Â* flovent-one time daily Â* Â* Â* Â* Â* intal-two times daily Â* Â* Â* Â* Â* Â* Atrovent- prn Â* Â* Â* Â* Â* claritin-one time daily Â* Â* Â* Â* Â* primsol-one time daily Â* Â* Â* Â* Â* bentyl-three times daily artaine-three times daily Rynn: Keppra-two times daily Â* Â* Â* Â* Â* Â* Â* Â* Â* claritin-one time daily Â* Â* Â* Â* Â* Â* Â*Albuterol- prn Â* Â* Â* Â* miralax-one time daily
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Kris 3/24-26wk twin girls born 7/01 at 1lb15 & 1lb13. Rynn-trach. malacia, Grade 1 SGS, reflux, asthma, autism(high funct. Asperger's) & epilepsy. Madelyn-severe trach. malacia, Grade 3 SGS(Trached 10/21/01 to 11/20/11 DECANNED) ,PVL,BPD,CP,submucousal cleft,reflux, G-button(12/01), nissen X2, off vent '03.Two of the most Perfect Princesses! !!
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#10
04-26-2006, 07:51 PM
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Jack is finally back to everything PRN - which means no meds unless sick. His new pulmonologist wants us to give maintenance pulmicort/xopenex. But, I choose not to
 Edit: I lied - I forgot that Jack gets Fosamax 1x per week.
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10) Jack's Journey and Then Some TouchStones of Compassionate Care The Willow Tree Foundation   “Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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