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Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

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  #1  
Old 04-20-2006, 05:40 AM
hcs_mom hcs_mom is offline
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Hi Paula!

Welcome! I looked around on Tim's website and he is adorable and such a little fighter. I have found so much support and love from this group...I can't imagine having made it the last 2+ yrs without them!!!

I look forward to getting to know you and Tim.

Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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  #2  
Old 04-20-2006, 07:04 AM
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bex271 bex271 is offline
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Hey Paula, you have a very cute little boy. This is a great place. look foward to getting to know you and tim

becca
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becca, mom to jonah dob 11-25-03.treacher collins extremely delayed but the light of our lives and very determined to prove everyone wrong especially the doctors.
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Old 04-20-2006, 07:16 AM
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sandra sandra is offline
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Hi Paula,

Welcome! What a great website and a beautiful little boy Timothy is. You will love this website and I look forward to getting to know you.

Find the off topic board for some just fun type of posting. It has helped us all to get to know each other in a whole new way!
Sandra
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.


B & C are surviving triplets. Brooke survived for 1 month.
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Old 04-20-2006, 07:49 AM
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Kate Kate is offline
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Hi Paula,
I really enjoyed looking through your website-you have been through a lot in the last 3 years. I think that you will find the boards very helpful. The ladies (okay and guys too) are very helpful and are always here if you need a good laugh or cry. I'm looking forward to getting to know you and your little guy. (What a cutie!!)
Welcome!
Katie
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Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT!
www.caringbridge.org/mn/mitchelljohncragg

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Old 04-20-2006, 08:54 AM
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WeAdoptKids WeAdoptKids is offline
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Hi Paula:

Welcome to the family here. As with everyone else, I check out Tim's website and he is a doll. We have a few here that wil threaten to eat him.... just cause he is so cute.

You have had a busy time with him for sure. Anyway, we are tickled that you have found us and we look forward to getting to know you both better.

Roberta
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Married to Merrill...33 years...Blessed Mom to 21 as of last count... Michael-33, Maxwell-29, Mallory-27 Justin-23, Marshal-23, Jesse-22, Jeremy-20, Micah-18, Mordachi-15, Jericho-14, LisaMarie-12, Joseph-11, McClain-9, Joey-8, MacGyver-5, Maverick, McCoy 2, his twin sister Macylea and the youngest Montana 16 months. Malachi and Jason-in Heaven watching over us all.

http://www.merrillsimonfamily.blogspot.com/
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Old 04-20-2006, 09:00 AM
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twintotwin twintotwin is offline
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OK, LOVE the Crayon up the nose pictures!! Looks like Timothy is our kind of guy!

Welcome!

Kerry
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!

The Birthday Boys by TwinTransfusion, on Flickr
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Old 04-20-2006, 10:11 AM
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Welcome Paula!

So glad you found us! Tim looks like an amazing little soldier! You can tell he is the light of your life and as others have mentioned, he is totally edible!

Luv your website!

Dawna
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Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11.
Photography website: http://pricelessmemoriesphoto.com/

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  #8  
Old 04-20-2006, 10:47 AM
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sassyangel4u2nv sassyangel4u2nv is offline
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Welcome Paula and Timothy and other family members.

He is a very good looking and sweet looking child.. Welcome once again
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Dee, Mother of Ericka. D.O.B. 12/11/03...preemie at 27 wks gestation, GTube on 07/02/04. Trached 03/22/05Fundoplication/Nissen in 2005. Decanned 10/17/07!!!!!!!!The little hero is the one who melts my heart every day for all her accomplishments.
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  #9  
Old 04-20-2006, 11:22 AM
Missy Missy is offline
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Welcome to you and Tim!!

He is such a cutie and I love that website!! Give him and from us!
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Mom to Brandon, born April 25 '05 @ 27 wks, he thinks he's Tigger. Â*Also mom to Michael, born Dec 9 '97, best big brother in the world and way too smart for his own good, and Lexie who was stillborn Aug. '04, who's looking down from Heaven shaking her head at her brothers!!
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Old 04-20-2006, 12:11 PM
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JWorthington JWorthington is offline
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Welcome Paula and Tim

I loved looking at the photos on Tims website, what a lovely boy he is He has been through such a lot and every birthday is a celebration with kids like ours. Glad you found this site, you'll find lots of support here.

Julie
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Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14).
I am first and foremost a child
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