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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
04-16-2006, 10:26 AM
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Hi everyone,,,my son is scheduled for a bronch and possible decan tomorrow (if everything looks good in the airway). I'm feeling alot of jitters and was hoping someone that has a decanulated child could give some advice! Jordan has been so healthy the last year and i'm ready for this trach to come out but now the day before i'm getting scared!! Thanks for any advice you may have
Jordan's "nervous" mom  
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#2
04-16-2006, 12:34 PM
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No advice, because we will be doing the same thing on May 15, but I wish you the best!
__________________
Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.  B & C are surviving triplets. Brooke survived for 1 month.
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#3
04-16-2006, 01:37 PM
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No decan advice here, but I hope things go well for Jordan and he comes home without the trach! Â*Good luck!
Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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#4
04-16-2006, 02:17 PM
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No advice on the decan but I am wishing you the best of luck! Hope all goes well with the bronch tomorrow and he is decanned!!!!!
 Rachel
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Rachel mama to Kara Beth April 9, 2004 Laryngomalacia, High pallet, FINALLY vent free (8/05), Precious Smiley Princess who will tell you like it is!!!! & Timothy Sept 2008 Healthy as could be Also expecting again due in June 2010  
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#5
04-16-2006, 04:27 PM
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Hoping and praying all goes well!
__________________
Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11. Photography website: http://pricelessmemoriesphoto.com/ 
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#7
04-16-2006, 07:15 PM
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good luck
__________________
mommy to Jacob(5) Hannah(2y)birth Asphyxia,GERD,deaf, fundo 5/04and GT,trach 9/04,fundo redo11/04 and cochlear implant, and BIG Decanned 8/14/06 and new baby MacKenzie (1)
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#8
04-16-2006, 07:27 PM
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I have no advice for ya but wanted to wish the both of you good luck!!!
Let us know how it goes, Annette
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Annette, mom to Ashley born May 13/03, pfeiffer syndrome type 2, cloverleaf skull, g-tube, fundo, shunt, dev. delay, seizures, untreatable central apnea. Decanned September 3/09!!! Also mom to Mitchell born Feb 27/08, perfectly healthy. They've made my life complete.   
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#9
04-16-2006, 07:30 PM
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Good luck! Hope all goes well!
mandi
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Mandi mom to Alissa Former 24weeker born 2-25-04 trached May 04. Had Ltp 11-28-05 Now trach free.  Also mom to Makayla age 8 and summer2 www.caringbridge.org/visit/alissa
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#10
04-16-2006, 09:46 PM
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Will be crossing my fingers and toes for Jordan. Please keep us posted.
__________________
Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!  The Birthday Boys by TwinTransfusion, on Flickr
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