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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
03-30-2006, 07:04 PM
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HI GUYS I'M HOME AND HAPPY TO BE !
WELL WE GOT GREAT NEWS! DR.AMIEN (pulmonary)SAID ANDREW HAS "NORMAL LUNGS". CT SCAN WAS GOOD. ITS A GO FOR SURGERY MAY,30.2006 ALSO DR.COTTON WANTS TO DO IT IN ONE STAGE. CAN YOU ALL HEAR ME BITING MY NAILS?! CAUSE THATS ALL I'VE BEEN DOING. WHO HAS EXPERIENCE WITH THIS? AND WHATS THE SIDE EFFECTS SHORT AND LONG TERM? THANKS FOR YOUR SUPPORT Linda Rocco mom to Andrew 
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#2
03-30-2006, 07:47 PM
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Linda,
I'm so glad Andrew got a good report!!! That has to make you feel a *little* better going into surgery. I have no experience with a single stage, but there are lots of kids here who have done it successfully! I'm sure they will help! I'm sure while you are here for Andrew's surgery Hannah will be back down for ML&B and stent removal. Stay healthy and I'll see you at the end of May...it isn't too far off!!! Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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#3
03-30-2006, 08:12 PM
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Welcome home guys! Sounds like good news. Please keep us posted Linda
__________________
Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!  The Birthday Boys by TwinTransfusion, on Flickr
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#4
03-30-2006, 08:33 PM
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No experience but welcome home and I hope everything goes well!
__________________
Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.  B & C are surviving triplets. Brooke survived for 1 month.
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#5
03-30-2006, 09:35 PM
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Good news - love hearing that!
Liz javascript:emoticon('  ')
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Mom to Nate 13, Clara 11, Zane 5 and Seamus 5. Seamus has Beare-Stevenson Syndrome, a craniofacial syndrome. Trached 11/11/05 for severe sleep apnea. Also has a VP shunt and wears a hearing aid and glasses.
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#6
03-31-2006, 07:28 AM
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Fantastic news Linda
Welcome Home Andrew  Julie
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#7
03-31-2006, 08:23 AM
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Wonderful news Linda. Glad to hear it. Good luck.
__________________
Tess-mom to Abigail 9 yrs old. DX Central Congenital Hypoventilation Syndrome and has a pace maker. Abby was decannulated April 15, 2010. She now sleeps with a V-pap machine and mask. Also mom to a fiesty red head named Olivia who is 6. I am the happiest mommy right now, all is good.
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#8
03-31-2006, 01:41 PM
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Alissa had a stage one by Dr Cotton after Ltp he takes them back to or in week and checks for swelling and if all looks good they downsize vent tube and let them wake up for extabaton the next day we were in cicni for 16 days it is a hard surgery expecially the withdraw. it is hard to watch but worth it to see your little one with out a trach another kid marissa had it one and her mom had a good journal of what to expect day to day will gop find the link and post again hope all goes well with Andrew!
mandi
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Mandi mom to Alissa Former 24weeker born 2-25-04 trached May 04. Had Ltp 11-28-05 Now trach free.  Also mom to Makayla age 8 and summer2 www.caringbridge.org/visit/alissa
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#9
03-31-2006, 01:45 PM
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__________________
Mandi mom to Alissa Former 24weeker born 2-25-04 trached May 04. Had Ltp 11-28-05 Now trach free. Also mom to Makayla age 8 and summer2 www.caringbridge.org/visit/alissa
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