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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
03-24-2006, 11:21 AM
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I am so touched by the prayers and support from this fantastic group! We were all blessed with special children to make us stronger. "Honored" doesn't even begin to describe how I feel to be among such a strong group of parents. Thank you all, and I will try to stay in touch with results through Emery's website!
Andrea 
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#2
03-24-2006, 11:28 AM
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I'll keep checking his website for updates! I've already been a few times
__________________
Kristy Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
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#3
03-24-2006, 12:46 PM
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My prayers are with you while you are waiting on the results. i remember waiting on the results for Franks biopsy results when they though he may have cancer. It was extrucating (sp?). then they came back with preliminary results of a persistent virus, and was going to send it off for more tests. Well then TS Allison hit and the pathology lab flooded and the further test could not be done because the sample floated away.
Misty
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SW and Misty...parents to Kathlynn(16), Stephen(14), and Frank(13) Frank= CP, CMV, microcephaley, epilepsy, chronic lung disease, non-verbal; decannulated 9/7/06; happiest little boy I know.
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#4
03-24-2006, 01:03 PM
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I am anxiously awaiting-checking the caringbridge site often. I cannot imagine how anxious you must be having to wait. I've been saying many prayers for you the last couple days and will continue. Take care
 
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Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT! www.caringbridge.org/mn/mitchelljohncragg 
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#5
03-24-2006, 02:56 PM
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Got everything crossed for you.
Julie
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#6
03-24-2006, 06:36 PM
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I just read the update on Emery's page. I will continue to keep your family in my thoughts and prayers, and I hope you can get some answers. Not knowing is the toughest part.
Amanda
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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