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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
03-19-2006, 03:46 PM
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Has anyone used Nutren Jr. ? It is a formula like Pediasure....our dr wants us to try it with Mitchell but I can't find it ANYWHERE!! I've called almost every store I can think of. He told me that we can get it right in town....but can't find it. I'll have to call him tomorrow and ask him exactly where to get it...just wondering if anyone else has used it.
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Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT! www.caringbridge.org/mn/mitchelljohncragg 
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#2
03-19-2006, 03:49 PM
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We use something called Nutrini, don't know if its the same thing, it is a formula and Sam tolerates it pretty well. There is also something called Nutrison, but that is for older kids/adults. We get ours delivered direct to home by the supplier.
Julie
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#4
03-20-2006, 01:12 AM
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When one of ours was using that formula we got it at one of the pharmacies in our area. Try calling your DME or one of the local pharmacies.
Good Luck and God Bless You. Judy and the 4 special Angels  
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Judy, Ken and *4*special Angels (Shawnee 13, CP, develop., men. delayed, wheel chair.*Kimberly, 11, CP, Hydro.,02, Microcep, leg. blind, G-tube, develop/ ment. delayed, *Kenya 13, Trach, CP, 02, leg. bld., hear. impair,J tube. 2 Angels in Heaven: Kiley and Colton 
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#5
03-20-2006, 07:59 AM
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Nick was on Nutren Jr for two years after pediasure. We were told it's easier for them to digest (doesn't sit in the stomach as long). It's a little expensive, we got a doctors order for it and ordered it through our medial company our insurance company paid for it. Before we got the script I did order it from our pharmacy or the local grocery store a few times. It's made by Nestle and I believe it can be ordered on-line too.
Hope this helps Carrie
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 Our little miracle, Nicholas Scott born 08/09/02; CHARGE Syndrome, bilateral cleft lip/palate, congenital heart disease, trach and g-tube, hearing aids. Decanulated!
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#6
03-20-2006, 09:11 AM
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kate,
We use/d it .... EBAY!! There are thee different caloric varieties. We love it!
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Leslie, mother to Chris (12), Chase (3) and Chad (2) I have 3 boys cause I didn't want 4. Chase- X 31 weeker, Trachea Esophageal Fistula, Esophageal Atresia, Pyloric Stenosis, VSD, Pulmonary Stenosis, Severe malacia (90% occlusion)..one failed decann attempt
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#7
03-20-2006, 11:42 AM
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We used Nutren Jr and bought it from Ebay. Pretty cheap.
Also, when we visited Cinci, the GI team told us about Carnation instant breakfast and how they started making individual packaged instant carnation breakfast drinks in a 4 pack...and since they are the same manufacturer as Nutrin Jr (Nestle/Carnation), it is about the same ingrediants. And WAY cheaper. I'd ask your ped and compare. Michelle
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Michelle, Marisa's Mom, 27 week preemie, trached from 11/03 - 9/04 for severe subglottic stenosis, LTP 9/04, right hemiplegia (Grade IV left IVH/PVL), survivor and my hero with the most beautiful smile! http://www.freewebs.com/marisanicole
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