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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
03-18-2006, 04:33 PM
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Yaaaaaaa!!! After ONLY
 six months we finally got approval for Maddy's Easystand stander!!!! We put in for it in September and I have been fighting since then!!!! Now, I just have to wait till Monday for the equipment place to order it!!! It better not take forever to come in!!!! Kris 
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Kris 3/24-26wk twin girls born 7/01 at 1lb15 & 1lb13. Rynn-trach. malacia, Grade 1 SGS, reflux, asthma, autism(high funct. Asperger's) & epilepsy. Madelyn-severe trach. malacia, Grade 3 SGS(Trached 10/21/01 to 11/20/11 DECANNED) ,PVL,BPD,CP,submucousal cleft,reflux, G-button(12/01), nissen X2, off vent '03.Two of the most Perfect Princesses!  !!
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#2
03-18-2006, 07:38 PM
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 Congrats! Here's hoping it doesn't take 6 wks to come in!! 
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Trish PROUD Mama to TWO 26 wkrs 1055 g- Olivia Forever 7, trached for 6.5 yrs, gtube, iv port, BPD, Hydro/VA Shunt, Epilepsy, CP, Fought Hepatoblastoma for 28 months 688 g- Nathaniel is my bright 10.5yo
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