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Old 03-16-2006, 04:25 PM
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Nate's Mom Nate's Mom is offline
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We were discharge on Tuesday night. Then we had to wait until 11:00 pm for Apria to deliver our O2. I think I got about 8 hours sleep over the last 3 nights!! But at least we are home and Nate is doing so much better!

He's still on O2 but only .25 liter. Hopefully tomorrow when we check in at the Dr. he'll give us the ok to stop.

Tuesday was my b-day so that was about the best present I could have gotten. We'd already spent our anniversary in the hospital!

I hope Jacob gets to go home soon!
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~Marcie~Mom to Nate (8); trached at 5 wks due to chronic aspiration; CP, hypoglycemia (controlled with diet and meds), seizures, g-tube fed; Also mom to Brianna (16), Allison (14) and Delaney (3)

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Old 03-16-2006, 07:11 PM
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Marcie, I'm so glad Nate is home and hopefully you can kick the o2 soon. I'm beginning to feel the effects of sleep deprivation, so I know how you feel.
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube.

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Old 03-16-2006, 07:13 PM
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WoooHooo! Welcome home and Happy Birthday!
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.


B & C are surviving triplets. Brooke survived for 1 month.
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Old 03-16-2006, 07:50 PM
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Awesome Nate! I'm glad you are home and that you got a great gift!!!

Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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Old 03-16-2006, 08:10 PM
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Glad to hear you're home. Maybe I'll get around to returning your stroller now. I remember it when I buy groceries and open the trunk, but in between it slips my mind. I'm glad everything turned out OK and hope he's off the O2 soon. Now get some
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Last edited by zachgram : 03-06-2011 at 05:24 AM.
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Old 03-16-2006, 09:28 PM
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Marcie, that's great news!! I hope you can kick O2 asap!

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Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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Old 03-16-2006, 09:43 PM
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Marcie,

Yeah for Nate!
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad!

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Old 03-16-2006, 09:48 PM
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Glad he made it home Hope you can get some rest
mandi
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Mandi mom to Alissa Former 24weeker born 2-25-04 trached May 04. Had Ltp 11-28-05 Now trach free.
Also mom to Makayla age 8 and summer2
www.caringbridge.org/visit/alissa
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Old 03-16-2006, 10:52 PM
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Marcie! What a wild ride! Glad you are home and hope you get some good soon!
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Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11.
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Old 03-16-2006, 10:58 PM
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Welcome home!





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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!

The Birthday Boys by TwinTransfusion, on Flickr
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