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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
03-10-2006, 10:47 PM
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I don't want to upset anyone with this article as it is about a very bad person in a long-term children's hospital. Please be aware that it can be upsetting.
But I wanted to share it because it somehow really hit home and made me so sick reading it. How could someone be so awful and take advantage of these angels who are helpless? http://www.foxnews.com/story/0,2933,187530,00.html 
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Michelle, Marisa's Mom, 27 week preemie, trached from 11/03 - 9/04 for severe subglottic stenosis, LTP 9/04, right hemiplegia (Grade IV left IVH/PVL), survivor and my hero with the most beautiful smile! http://www.freewebs.com/marisanicole 
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#2
03-10-2006, 11:01 PM
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What a nightmare for all those precious angels! Wicked, evil, sick, etc...
What can make someone so warped? I cannot think of a punishment severe enough (but I have some ideas where they should start) 
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Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11. Photography website: http://pricelessmemoriesphoto.com/ 
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#3
03-10-2006, 11:16 PM
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That is just horrible. I can not understand how people can do this kind of crime to defenseless children.
At my husband's work they have many things like this happening. He works with adults with many different forms of disabilities. I just dont understand. It is scary. I feel for all these children and families that have to go through something so tragic like this. 
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Dee, Mother of Ericka. D.O.B. 12/11/03...preemie at 27 wks gestation, GTube on 07/02/04. Trached 03/22/05Fundoplication/Nissen in 2005. Decanned 10/17/07!!!!!!!!The little hero is the one who melts my heart every day for all her accomplishments.
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#4
03-10-2006, 11:53 PM
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What a disgusting world we live in anymore.
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Trish PROUD Mama to TWO 26 wkrs 1055 g- Olivia Forever 7, trached for 6.5 yrs, gtube, iv port, BPD, Hydro/VA Shunt, Epilepsy, CP, Fought Hepatoblastoma for 28 months 688 g- Nathaniel is my bright 10.5yo
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#5
03-11-2006, 12:08 AM
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And we have to defend our children's right to live in a family instead of an institution.... I should carry around a zillion copies of this report and hand one to every person who just doesn't "get" why we take kids out of these places, why we try to have them shut down, why I go around the country training social workers on the adoptability of severely impaired and medically fragile children.
People can be so stupid.Karin
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#6
03-11-2006, 03:43 AM
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That is just sick
Julie
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#7
03-11-2006, 05:05 AM
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I am thoroughly disgusted. There is no punishment severe enough for something like that...
Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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#8
03-11-2006, 06:54 AM
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__________________
Cindy - Mom to Aaron (age 19), trached for 4 years, subglottic stenosis, ADHD, learning disability, former 26 week preemie and identical twin to Eric (age 19), spastic quad CP, moderate MR, seizure disorder; Anthony (age 19), spastic quad CP, g-tube, seizure disorder, cortical vision impairment, profound MR; and Natasha (age 6) CP, cortical blindness, seizure disorder, profound MR, shunt, g-tube.  Home Page: http://www.bissells.com
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#9
03-11-2006, 09:03 AM
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That is sick!!
Annette
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Annette, mom to Ashley born May 13/03, pfeiffer syndrome type 2, cloverleaf skull, g-tube, fundo, shunt, dev. delay, seizures, untreatable central apnea. Decanned September 3/09!!! Also mom to Mitchell born Feb 27/08, perfectly healthy. They've made my life complete.   
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#10
03-11-2006, 09:58 AM
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Disgusting.
My heart goes out to the parents of those children. It's things like this that remind me how "small" my problems really are. I wish we could do something to comfort them.
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!  The Birthday Boys by TwinTransfusion, on Flickr
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