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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
03-04-2006, 01:15 PM
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 My little guy was showing signs of pneumonia last night. My husband took him in early this morning and sure enough that's what he has. Usually he'll be there for a few hrs until he's breathing better, but this time they want him to stay. I don't really think it's necessary, usually as soon as the antibiotics kick in he's fine. I wish there was a way to get another opinion. I feel bad, he was already feeling out of sorts about Malachi coming into our lives. At least he's doing better now. I miss him, I'll have to figure out how to get to see him. Malachi wants to eat all the time. This makes me realize how tough it'll be when Luke gets the LTP.-Sarah
__________________
~>momma to Luke (3/04), subglottic stenosis (trached 3/04-5/07), Malachi (2/06) & Isaac (1/08)<~  3-2007
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#2
03-04-2006, 01:42 PM
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Oh no! This must be so hard for you. I hope Luke is on the mend soon. Prayers....
__________________
Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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#3
03-04-2006, 02:02 PM
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Not what you or Luke needs right now. I hope he is home very soon.
__________________
Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10) Jack's Journey and Then Some TouchStones of Compassionate Care The Willow Tree Foundation   “Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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#4
03-04-2006, 02:14 PM
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Poor little guy! Hope he is home soon!
__________________
Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.  B & C are surviving triplets. Brooke survived for 1 month.
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#5
03-04-2006, 02:27 PM
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I hope he is feeling better soon!
__________________
Kristy Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
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#6
03-04-2006, 03:28 PM
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Poor Sarah, you've had one rollercoaster ride the past few months. I'm keeping a good thought for you & yours,
__________________
Milan - 10/01/04, 31 wk preemie due to maternal HELLP syndrome. Has challenges. DECANNED AUG 2006 and so far, so good with the nose breathing!
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#7
03-04-2006, 06:12 PM
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Sarah- If you can make it through this year, you can make it through anything!
I was pregnant when my boys first came home. And right after I gave birth I was in the ER with both of the twins (one day apart each). The boys were admitted to PICU for pneumonia and I had a brand-spankin'-newborn at home. Plus recovering from a c-section. I just went into auto-pilot and that is what you'll do too. (I can't believe it's going to be a year in 3 weeks since that time)! You can do it! I promise... you will be fine.
__________________
Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!  The Birthday Boys by TwinTransfusion, on Flickr
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#8
03-04-2006, 06:49 PM
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Sarah
I am sorry this is happening to you now, of all the times. I hope Luke is better very soon and home quickly!! 
__________________
 Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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#10
03-05-2006, 07:41 AM
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So sorry to hear that Luke is so sick Sarah - what awful timing. Hope he is better soon and Malachi doesn't give you too much of a hard time
Julie
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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