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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

02-15-2006, 08:06 PM
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Senior Member
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Join Date: Oct 2005
Location: St. Louis, MO
Posts: 2,823
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We have your basic Nellcor pulse ox--we attach the sensor to Nathan's foot, plug him in, turn on the machine and hear the audible beeping...I love the audible beeping because I know exactly what all the sounds mean. My question is this: now that Nathan is getting older we'd love to move the machine out of his room so he can sleep without the beeping. I just can't imagine it's good to sleep with that constant beeping. I know he's used to it, but I want it out!! Do they ever give remote pulse oximeters to home health patients? In the hospital it was silent by his bed but it beeped at the nurses station. I don't want to run a big, long extension cord out of his room because I don't want him messing with it when he starts to move around more.
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Kristy
Nathan is 7! Trached at 2 hours old--laryngeal atresia. Double stage LTP 5/26/06, double stage LTP 1/23/09 and single stage LTP 4/21/09. Airway has restenosed, but we're still trach free 9/2012. Ding dong, the trach is gone!!
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02-15-2006, 08:24 PM
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Member
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Join Date: Jul 2002
Location: South Carolina
Posts: 607
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Joel's pulse ox had volume control for the regular beeps, but would still alarm for low sats, high heart rate etc. I liked that because it would alert me when it was important and if I needed it to beep for any reason, I just turned to volume up. Does that make sense???  If you can't find a remote one, you might consider trying one of those.
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Lisa- mom of John Patrick age 9 and formerly trached Joel age 4- DECANNULATED JANUARY 25, 2004!!!
Foster mom to Sierra born July 16, 2005- CHARGE syndrome, grade IV kidney reflux, severe hearing loss, trach & gtube for laryngeal cleft and chronic aspiration, gorgeous blue eyes
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02-15-2006, 08:42 PM
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Mentor
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Join Date: Jul 2004
Location: USA
Posts: 7,467
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Do you mean the pulse volume? We turn that down at night. Just hit the down arrow on the Nellcor. The actual alarm volume for any sats and pulse out of parameters will remain audible.
I hope that is what you mean. The pulse would drive us crazy with the twins, especially since we could never get them synchronized.

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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!
The Birthday Boys by TwinTransfusion, on Flickr
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02-15-2006, 08:47 PM
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Administrator
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Join Date: May 2002
Location: Phoenix, Arizona
Posts: 7,320
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Same here ... I nix the "beeping". I'm only interested in the actual alarm if Jack's sats or heart rate fall below (or above) our set limits. It would drive me insane to hear the continuous beeping all night long. In my case, I find it difficult just to listen to the swoosh of the vent all night long -- although, it's amazing how tuned in you become to the thing and can tell when he is awake or if the vent is autocycling.
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02-15-2006, 09:31 PM
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Senior Member
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Join Date: Nov 2003
Location: Texas, US
Posts: 5,835
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We turned the beeping down so we couldn't hear it. I couldn't handle that. We can still hear alarms.
I really want someone to invent a wireless pulse ox. A probe hooked on the patient, but no cord between the patient and the monitor.
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.
B & C are surviving triplets. Brooke survived for 1 month.
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02-16-2006, 08:44 AM
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Mentor
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Join Date: May 2004
Location: Missouri
Posts: 5,260
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Amen, Sandra! Why can't they invent something like that? How about an implantible "chip" that could be inserted just under the skin that would do the same thing? Especially for our kids who have chronic problems, it would be too cool. 
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad!
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02-16-2006, 08:59 AM
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Member
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Join Date: Jan 2006
Location: Arizona
Posts: 687
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There is a pulse ox that has no cords or anything to it.. The only thing is that it does not have a alarm. They are truly expensive and they are very handy. They sent us home with one but that was before Ericka got her trach so we can spot check her.
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Dee, Mother of Ericka. D.O.B. 12/11/03...preemie at 27 wks gestation, GTube on 07/02/04. Trached 03/22/05Fundoplication/Nissen in 2005. Decanned 10/17/07!!!!!!!!The little hero is the one who melts my heart every day for all her accomplishments.
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