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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
02-04-2006, 10:39 PM
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On Thursday morning at 2am we also had to make a trip to the ER. Zoe was coughing non-stop, literally. Usually she doesn't need any suctioning at night while sleeping. From 9ish pm - 2am she probably needed over 20 suctions. They did a trach sputum (sp?), chest x-ray, influenza and rsv swab. Everything came back normal, except for the fact that she has tracheitis. We have no night nursing - on Thursday night I had only had 2 hours of sleep in over 24 hours because of the contstant suctioning. My AWESOME nurse came in on Friday at 2am and stayed until 8am so I could get some sleep. Zoe seems to be on the mend now - last night she went about 3 hours without any suctioning.
My question is, when should I change her trach? B/C of the tracheitis, should I do it now? We normally change it once a week, on Monday. Should I just wait until Monday? Thanks, Lora
__________________
Lora - Mom to Zoe (12/26/04), former 27 weeker, BVCP, Subglottic Stenosis, mild reflux, g-tube http://www.caringbridge.org/visit/zoeglasel 
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#2
02-04-2006, 10:43 PM
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I would just do it on the normal day if it is that close. We do weekly, so I usually just do it on the normal day. If we went longer periods of time, I would probably change it once Brian started doing better.
__________________
Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.  B & C are surviving triplets. Brooke survived for 1 month.
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#3
02-05-2006, 06:42 AM
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I would wait as well, especially since she is getting better. The poor thing that is a lot of suctioning. Poor you, you must be exhausted. I am glad that she is on the mend. Lora, I hope that you can get some rest.
Teresa ________ R2 Last edited by T-bone : 03-25-2011 at 05:08 AM.
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#4
02-05-2006, 08:21 AM
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I think i would wait. Hope she ia back to her self soon. Glad she is feeling some better
 mandi
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Mandi mom to Alissa Former 24weeker born 2-25-04 trached May 04. Had Ltp 11-28-05 Now trach free.  Also mom to Makayla age 8 and summer2 www.caringbridge.org/visit/alissa
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#5
02-05-2006, 10:01 AM
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I would just wait too. Sorry to hear about Zoe! Glad she is feeling better!
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad! 
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#7
02-05-2006, 10:47 AM
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Hope Zoe is feeling better soon. I agree with everyone else - I would wait.
((((HUGS)))) Julie
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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#8
02-05-2006, 12:26 PM
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poor Zoe!! sounds terrible. I hope she is better soon and that you get some rest
xo christina
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Christina mom to Max born 01.19.05 @ 24wks LTR 03/22/2007 LTR 07/15/2008 decannulated, but uses CPAP while sleeping
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#9
02-05-2006, 06:20 PM
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Bless her heart, I hope she gets to feeling better real soon. Hope you are getting at least some sleep now. Sabrina
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Sabrina, mother to Will born a 24 weeker May 4, 2005. History of BPD, Trach August 2005, Gtube October 2005, ROP, Single Stage LTP 1/25/07 and trach free!!!! The happiest little boy who is the center of my world!!
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#10
02-05-2006, 11:35 PM
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XOXOXOX for both of you... I know what you have been going through.. I just went through it two weeks ago.. I am finally catching up on sleep. I hope she jumps back in no time..
__________________
Dee, Mother of Ericka. D.O.B. 12/11/03...preemie at 27 wks gestation, GTube on 07/02/04. Trached 03/22/05Fundoplication/Nissen in 2005. Decanned 10/17/07!!!!!!!!The little hero is the one who melts my heart every day for all her accomplishments.
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