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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
02-04-2006, 02:57 AM
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hi all,
We are scheduled for reconstructive surgery and decannualtion on thursday. please give any tips, comments or advice that you have. we don't want to get our hopes up but ..i also want to be prepared. the doctors only say that he will be in the intensive care unit , in a complete coma, and then he will be moved to another unit and will go through drug withdrawl.and it will be about two weeks. but what will it be like for those two weeks? Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* worried and excited, Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â* Â*Kelsey 
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#2
02-04-2006, 07:16 AM
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I have no advice, but wish you the very best. I hope it goes easy and smooth!
__________________
Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.  B & C are surviving triplets. Brooke survived for 1 month.
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#3
02-04-2006, 12:19 PM
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The Ltp recovery is hard my little girl really had ithard with withdraws she shook alot and just did not act like she even knew us bacially it is hell but it is worth it in the end. Hang in there good luck!
mandi
__________________
Mandi mom to Alissa Former 24weeker born 2-25-04 trached May 04. Had Ltp 11-28-05 Now trach free.  Also mom to Makayla age 8 and summer2 www.caringbridge.org/visit/alissa
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#4
02-04-2006, 12:24 PM
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I will be praying for your family-I hope all goes well.
Katie
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Katie-mom to Mitchell, DOB 12/16/04 trisomy 13 mosaic, severe laryngotracheobronchomalacia trached 5/04, cleft lip and palate DECANNULATED 12/16/10 A GREAT BIRTHDAY GIFT! www.caringbridge.org/mn/mitchelljohncragg 
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#5
02-08-2006, 06:09 PM
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Best of luck tomorrow!
 Please let us know how everything goes.
__________________
Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!  The Birthday Boys by TwinTransfusion, on Flickr
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#6
02-09-2006, 12:27 PM
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Hope all went well, update when you can.
Julie
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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