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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
01-17-2006, 10:10 PM
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does anyone have any extra to get rid of? our dme will only give us 5 per month. macy goes to outpatient therapy 2x/wk and we go atleast one other place a week. frustrated!!!
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Mom to Macy, 28 weeker surviving twin of twin to twin transfusion syndrome, trached until 9/30/06 and Cole born full term and healthy 8/23/04. 
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#2
01-17-2006, 10:32 PM
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Macymom, I Â*have a few that I can send your way. I get 30 a month and never use that many a month and my stash builds up fast! Email me your address and I'll send some out to you. My email address is munchiemart@yahoo.com
Becky
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Becky Adult w/ ea/tef-repaired, chronic lung disease, o2, vent, j-button, trach and wife to the greatest husband in the world.  My blog: www.beckyhoughten.com 
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#3
01-18-2006, 10:28 AM
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Is it your DME only gives you 5 per month or is that what insurance allows??? I think you should call your insurance rep and check that out (I'll do it for you if you want!). It doesn't seem right at all! They are supposed to be changed after 24 hours!
PM me your address too. Hugs fellow TTTS victim! ~Kerry
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!  The Birthday Boys by TwinTransfusion, on Flickr
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#4
01-18-2006, 10:47 AM
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i think we have a few dozen around, pm me and i'll send them out to you.
sebby
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Menna born 1/19/04 former 24 weeker, trach 4/16/04 for tracheomalacia, developed subglottic stenosis. CTR 7/27/05--double stage LTP 3/13/ 2008.. Decan October '08....healthy happy crazy kid!!
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#5
01-19-2006, 07:13 AM
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Please e-mail me with your mailing address. I have a ton of these, and I'd love to send them to you. My son is on CPAP only 12 hours per day, and in the past two years, we have only had to take him out of the house on CPAP once. If I keep about 10 for myself as backup, I'll be happy to send you the rest.
On Tuesday, I was cleaning and organizing my son's closet, and I was trying to figure out what to do with all of them, so you've done me a favor! Leslie, mom to Sam
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