I can't believe you talked to the man who wrote that letter...that's awesome. Please let us know when you hear back from them. I am very curious to know WHY they are not producing trachs and to see if the reason the makers of Shiley gives you matches any info you get from the FDA.
You know, if the manufacturer had just been honest about this, even posted a notice on their website, this would have been soooo much easier.
I find it hard to believe that this stop in production was voluntary...especially considering the warning letter that was sent last year.
Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.