my son who is now 2 was born with vocal cord paralysis. Â*IT's been a tough but very, very informative road with the this diagnosis. Â*I think it has the doc's somewhat puzzled. Â*
Parker has always vocalized well... due to the positioning of his cords we were told. Â*His are in a paramedian position and through many scopes we also found out that he can close his cords sometimes and this helps with aspiration and coughing and just learning how to swallow and vocalize.
We were told in our case with the paralysis being unknown that Â*if the cords were going to start working they would with in 3 months of age (that's when parker was trached). Â*They usually (dr. Cotton , Cincinnati) give the kids a year and then will look at surgical intervention. We just took Parker to see Dr. Cotton about a month ago and he is scheduled for a lateralization procedure next thursday.
Parker has always been a trach puller.....yes scared us to death several times. Â*
Â* That is when we started to notice that he could tolerate the trach out and started asking the doc's about it. Â*What we found out in Parker's case is that Â*he could tolerate the trach out but over time would become exhausted from inproper air exchange from the paralysis and that's when he'd run into trouble. Â* We recently tried plugging him when we visited Dr. Cotton to find out he did well still /sleeping but when he got up and moved around it was just too tough for him. Â*HE was retracting and breathing very noisly.
Sorry for the novel....LOL....if you have any other questions please feel free to write me. Â*I'd love to chat. Â*This has been a very interesting travel for us but it's been good. Â*WE've learned so much and i'm thankful for the diagnosis being what it is...while we've waited for healing we've been able to enjoy his vocalizing and now he wears the Passy Muir valve all day so the trach stuff is very minimal. Â*Now we've all decided it's time for surgical intervention so he can have the trach out.
Parker's story is on Aaron's page 8Â*if you'd like to read about him.