Update on halle

#1 11-26-2005, 06:11 AM

Hi Everyone:

I haven't posted in a while so just wanted to let you know what's going on with Halle. Â*In a nutshell she's doing great. Â*She talks alot Â*of jibberish, (didn't think she would be able to do that with the trach), plays with her older brother and sis who is 14 and 12. Â*When I go over to my brother's, I pick up Halle, she put's her arms around my neck gives me a big hug then starts jumping in my arms. Â*She's going to be walking soon. Â*How in the world have you mom's dealt with that?With her being on the vent it's going to be hard being restricted by the tubing.

Another questions, how do you post a picture to this board? Â*I would love for you all to see Halle. Â*What a difference a year makes. Â*Last year Halle was very sick, 7 out of 11 doc's at UNC NICU didn't think the trach would help Halle. Â*But with prayers, Â*great doctors, and wonderful staff in the NICU, and great help from this board, she is a beautiful child. Â*One of the best tips we got from this board was when Halle was having lot's of clamp downs. Â*I think it was Sandra who advised us to use prune juice to prevent clampdowns when she was trying to have bowel movement. Â*Halle has been on prune juice ever since. Â*

Thank's so much for this board and the support you all give.

Sharon

twintotwin · #2 11-26-2005, 07:22 AM

Hi Sharon! I remember when Halle was clamping down. I guess it did turn out to be her BMs. Prune juice helped my boys a lot too. (Helps me too heh heh)

I'm glad to hear she is running around the house! Another true miracle!
I hope she is off the vent soon so you all don't have to chase her around w/the machine.
Please make sure you post a pic. Cindy keeps this thread in the Help Posts now:
Posting a picture

~Kerry

sandra · #3 11-26-2005, 10:45 AM

Wonderful news. I'm afraid I can't take credit for the prune juice. We tried that, but it didn't work for Brian. I'm glad Halle is doing so well.

Whitney · #4 11-26-2005, 08:34 PM

Sharon

I am glad Halle is doing so well. I would love to see a picture of her! Alex always desatted and clamped down when he tried to have a BM. One of our NICU nurses suggested prune juice, and Alex has been on it for a couple years. It still works like a charm!

Thanks for the update,

Whitney

JWorthington · #5 11-27-2005, 04:38 AM

Hi Sharon

Glad to hear Halle is doing so well. You're going to have difficulty keeping up with her soon. Sam is only on O2 and he has miles of tubing round the house so he can run around, but when we take him out to play I have to run after him with an O2 cylinder LOL

Julie

T-bone · #6 11-27-2005, 06:20 AM

It sounds like Halle is doing so well. That is just great news. It is amazing what they can do. I wish you a lot more progress this year with her.
My daughter is only on her vent while she sleeps so I can't help you with your mobility issue. I am sure that someone will give you some ideas.

Teresa
________
Bbw mexican

Melisande · #7 11-28-2005, 10:43 AM

Good to hear the good news!

Laurie · #8 11-30-2005, 01:49 PM

Evan learned to walk while on the mist collar and very O2 dependent - we had 50 feet of tubing, and he learned to drag it behind him. For awhile after decannulation, he walked with one arm held up - he was used to doing this to avoid the tubing snaking under his arm behind him!

Also, we used to stablize the tubing by tying it to his waist with a bandanna - this way if he pulled on it, he pulled from the waist, and not from the neck.

Good lucK!