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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
11-22-2005, 03:49 PM
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Yes, its that time of year again! We had to call an ambulance last night to take Sam to hospital as his saturations dropped really low. We had increased him up to 2 litres, but, because we don't have humidification at home (he just has O2 through his HME) we could not safely increase him any more. Thankfully the chest x-ray and bloods came back ok, he has been treated with nebulisers and humidified Oxygen. His temp remains pretty high and he is very lethargic. It is absolutely freezing here at the moment and they put a fan in the room last night to cool him down - I was frozen! I've left Dad with him tonight and come home to get some sleep (he didn't settle into bed until 2.15 am). Incidentally, it is almost 10pm in the UK.
Hope everyone else is doing ok, here's hoping this is just a mild one. Love Julie
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child 
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#2
11-22-2005, 05:06 PM
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Julie,
I am sorry to hear Sam is sick. I too hope its a short one and he's home very soon. Keep us posted, and try to get a little rest tonight! Hugs, Whitney
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 Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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#3
11-22-2005, 05:25 PM
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Julie
Hope Sam is feeling better soon. mandi
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Mandi mom to Alissa Former 24weeker born 2-25-04 trached May 04. Had Ltp 11-28-05 Now trach free.  Also mom to Makayla age 8 and summer2 www.caringbridge.org/visit/alissa
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#4
11-22-2005, 05:26 PM
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Julie,
I am so sorry to hear about Sam. Poor little guy. I hope that he recovers quickly. Love, Teresa ________ Digital Vaporizer Reviews Last edited by T-bone : 03-25-2011 at 04:50 AM.
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#5
11-22-2005, 06:10 PM
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Oh no Julie!
 Poor Sam!Please give him "get well" kisses from us 
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!  The Birthday Boys by TwinTransfusion, on Flickr
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#6
11-22-2005, 07:45 PM
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I hope handsome Sam will be out soon and breathing easy!
Dawna
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Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11. Photography website: http://pricelessmemoriesphoto.com/ 
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#7
11-22-2005, 11:47 PM
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Oh Julie!!! I'm so sorry to hear Sam is sick. Prayers that it will be a very short stay and that he is on the mend.
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Amy Mom to 25 weekers, Chloe, Gwynne- g-tube, nissen & Connor-trach/vent dependent, CP. atrophy of the brain, severe nuerological issues, g-tube & nissen
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#8
11-23-2005, 08:03 AM
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Hope little Sam is feeling better and home soon! Deb
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Grateful thorns have roses 24 weeker now almost 11 years old and in third grade! trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08 [IMG] [IMG]
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#9
11-23-2005, 08:36 AM
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Get well soon, Sam!
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.  B & C are surviving triplets. Brooke survived for 1 month.
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#10
11-23-2005, 03:53 PM
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Hope Sam gets well soon. Your in our prayers.
Misty
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Miracles still happen! Holly Grace 5-18-2001, Escobar Syndrome(webbing, muscle contracted, scolosis, club feet, short stature, off set ears(hearing loss), tethercord, fused joints) Diaphramtic herni/enventration, has only left lung, trach, g-tube, 8 surgeries and counting.
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