I nearly abused Tylenol PM for weeks prior to Hannah's LTP. We did a 2-stage (well, still in process should I say). But, Hannah did have another airway surgery that required sedation. That was awful. She looked so lifeless and every time she even started to move, they'd hit her again with some other drug.
The LTP IS scary. Hannah didn't do the whole sedation thing with it...it is a long road, but keep your faith. Make sure you ask lots of questions, and if you think something isn't right, SPEAK UP!!! And DON'T be afraid to demand to speak with the man in charge. Cinci Children's (as I'm sure is the case with many/most teaching hospitals) is famous for info getting passed to the parent by a resident or fellow. If you feel you aren't getting the true story or that something just doesn't seem right, do NOT feel as if you can't ask to speak with someone higher up. Demand that they respect you as a parent and caretaker.
I will try to get down there to see you either before/during your stay. Please feel free to email/private message me if you need anything while you are in town. We may be there some too as Hannah is awaiting a possible capping trial...
Take care. Many prayers for a safe, successful surgery.
Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.