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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

10-17-2005, 01:02 PM
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Senior Member
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Join Date: Oct 2005
Location: Riverside, ca
Posts: 1,225
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I was wondering where I could find information on children requiring a EGD before going forward and doing the Laryngotracheoplasty (LTP). My ENT wants the EGD but my GI seems hesitant. I know if my son has acid reflux it can ruin the his chances of a successfull LTP. I just haven't been able to find anything online to support this. It's probably just my searching technique, because I've had my ENT and many parents with trached children agree on the neccesity of the EGD.
Thanks 
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~>momma to Luke (3/04), subglottic stenosis (trached 3/04-5/07), Malachi (2/06) & Isaac (1/08)<~
 3-2007
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10-18-2005, 05:46 PM
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Senior Member
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Join Date: Oct 2005
Location: Riverside, ca
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has anyone here had this done?
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~>momma to Luke (3/04), subglottic stenosis (trached 3/04-5/07), Malachi (2/06) & Isaac (1/08)<~
 3-2007
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10-18-2005, 07:08 PM
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My son Mario did. The only reason it was done was because the ENT stated that my son's airway issues were because of ongoing reflux even though an UGI was normal. His scope showed persistent reflux/incomplete airway healing, feedings were held except via G-tube and Zantac was given for an additional two months. His G.I. disagreed with the necessity given the fact that an UGI was normal and the reflux should have been resolved with the Nissen. There were differeing opinions. Given my son's clinical picture at the time we went with the ENT's assessment. ( His oxygen sat's were felt due to reflux as per the ENT but the G.I. felt it was due to ongoing laryngotracheomalacia, they can control reflux with medications but the degree of malacia that my son had wouuld only get better with time)
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10-18-2005, 07:24 PM
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Senior Member
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Join Date: Mar 2002
Location: Moore, OK
Posts: 6,010
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I would have the reflux reevaluated before the LTP. The dr that told you reflux could compromise the success was right on target. And, it seems a lot of GI drs dont like to admit they havent "fixed" the reflux. Deb
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Grateful thorns have roses
24 weeker now almost 11 years old and in third grade!
trach-decanned for good in 2008, gtube, asthma, CP, MR, GERD, latex allergy, osteopenia, aplastic cerebellum, ADHD/OCD, 60 lbs of humor and fiest, 4'4" tall, patient at Shreveport Shriners Childrens Hospital,, and I may be leaving something out but she is happy and growing and the light of our lives! DECANNED 6-17-08
[IMG]
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10-18-2005, 09:28 PM
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Mentor
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Join Date: Jul 2004
Location: USA
Posts: 7,467
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We haven't had it done (EGD) ...but why is your GI hesitant? Does he/she feel it's too invasive?
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!
The Birthday Boys by TwinTransfusion, on Flickr
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10-19-2005, 03:09 PM
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Senior Member
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Join Date: Oct 2005
Location: Riverside, ca
Posts: 1,225
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He seems to be sensitive about putting Luke under for the procedure. He says because he'll be put under again for the surgery.
__________________
~>momma to Luke (3/04), subglottic stenosis (trached 3/04-5/07), Malachi (2/06) & Isaac (1/08)<~
 3-2007
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10-19-2005, 06:40 PM
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Join Date: Dec 2003
Location: Denver, CO
Posts: 5,387
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If your child is possibly refluxing, you would want to really eliminate that as a possibility. I would push for the scope. As for anesthesia, I know this sounds bad, but I wouldn't worry. If your child has had a few procedures and handled the anesthesia well, your chances of complications greatly decrease. We have truly lost count of all the different "sugeries" our kids have had and they have done well each time....
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Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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