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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
10-14-2005, 06:32 PM
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Hi Everyone,
Sorry to be away so long! Tristan has been admitted to the hospital with aspiration pneumonia since Monday! He is getting back to himself slowly but surely. He's been on IV antibiotics and steroids. It always amazes me the difference after the first dose of IV steroids. He had some problems with slowed heart rate while on the steroids/ Does anyone else have this symptom? They did an EKG, Echo, and put him on telemetry to monitor him more closely this time. Since this is his 6th round of pneumonia in 5 months and it was due to aspiration we have finally decided to go through with the Nissen. They will schedule it in 2-3 weeks so he will hopefully be past this episode and maybe before the next episode (wishful thinking I'm sure  )Oh, by the way, my other baby (Mya) was discharged today also! We all came home together! I wanted to fall down and kiss my kitchen floor when we came in! I ran back and forth between rooms the entire week and it's great to have my little ones home and in the same area. Blessings, Dawna
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Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11. Photography website: http://pricelessmemoriesphoto.com/ 
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#2
10-14-2005, 06:38 PM
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glad you are all home together, and everyone is doing better. the fundo can be a big difference, it was for us! it is just so hard to put them through it, but they recover so quick! i hope mya is recovering well, my little guy had open heart surgery at 7 days old, longest day of my life!
take care, mom to anthony 27 months
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#3
10-14-2005, 07:10 PM
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Wow, sounds like you had a rough week. I am gald to hear things are getting better. My son should be getting the nissen next week. I am confident that it will help with his reflux. The docs were also concerned with aspiration so I am sure it will help you. Good luck and I will be thinking of you!
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Mother of Johnny a beautiful Full term baby/Diaphragmatic Hernia CDH/ meconiun aspiration/ Severe pulmunary hypertension / NJ Tube till 7 months/ vented since March 29 at birth, trach since June 24/ Tracheolmalacia / Nissen w/g-tube October 21 www.carepages.com --carepage name:johnrmurphy
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#4
10-14-2005, 07:25 PM
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I am so glad your babies are home. I couldn't imagine two in at the same time. You are one tough mommy!!
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Leslie, mother to Chris (12), Chase (3) and Chad (2) I have 3 boys cause I didn't want 4. Chase- X 31 weeker, Trachea Esophageal Fistula, Esophageal Atresia, Pyloric Stenosis, VSD, Pulmonary Stenosis, Severe malacia (90% occlusion)..one failed decann attempt
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#5
10-14-2005, 07:36 PM
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Wow, that really must be tough having 2 kids in the hospital at the same time. Whew! I'm glad it's over though. I'll be keeping Tristan in my prayers and hoping the Nissen surgery goes well.
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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#6
10-14-2005, 09:55 PM
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It's for reasons like this that I'm OK with the boys' Nissens.
You just can't put yourselves through that anymore. Good luck- I hope Tristan is feeling better soon. And I hope your perm has relaxed a little ha ha. Just kidding- it wasn't big at all!
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!  The Birthday Boys by TwinTransfusion, on Flickr
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#7
10-15-2005, 11:20 AM
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Glad you've got your little ones home. The nissen should be a big help, we haven't looked back since Sam had his done.
Love Julie
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  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child
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