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Old 09-23-2005, 04:09 PM
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twintotwin twintotwin is offline
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Hi Everyone- I am so thankful for every one of you and all of your prayers. Thank you Susan.

I am so sick to my stomach rihgt now. I have never been so scared in all my life. The story is as Susan said.
Since the trach was sutured to his neck, when the tank tipped over it pulled the trach only half way so I couldn't get it out and place it properly.
He was turning bluer and bluer so I screamed for help. When everyone came in I ran out into the hallway and freaked out. I ended up in the ER b/c I had a massive panic attack.
Before they could register me at the ER my mom showed up with my Xanax stash. Then I was calm and more collected.

They put me in the Ronald McDonald room and I fell asleep for a few hours.
Milo is on a vent, they put in chest tubes b/c of the lungs collasping. They said he only desatted to 40 for a short time so there probably isn't much damage. His chest cavity filled up with air. The doctor called it neurothorax. I didn't look the term up yet so I may have spelled it wrong.

I don't know if any of this makes sense. I have such a pounding headache, I just diodn't want anyone to keep worrying.

Love Kerry
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!

The Birthday Boys by TwinTransfusion, on Flickr
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Old 09-23-2005, 04:18 PM
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Oh, Kerry. My heart goes out to you. Poor little Milo. I bet you were scared. That is just so terrible. I am glad that you have your mom to help out at this time. That is good that you were able to get some rest. thankyou for taking the time to keep us posted. You and Milo are in my thoughts and prayers.

Lots of love and hugs,
Teresa
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Last edited by T-bone : 03-25-2011 at 04:36 AM.
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Old 09-23-2005, 04:25 PM
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Oh Kerry

I am glad you updated. Â*I was having a mini panic attack here at work. Â*Your poor angel. Â*PLEASE know I will send lots of hugs and prayers your way tonight. Â*I am relieved he didn't desat for too long, though its still devastating. Â*Hang in there.

Â*

Whitney

... Is it pneumothorax?
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Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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Old 09-23-2005, 04:40 PM
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Kerry,

Thank you for updating. I'm glad Milo didn't desat for long. Still so scary. Please take it easy and update when you can. We are pulling for Milo. He is one tough cookie, as we all know.

Sandra
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Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.


B & C are surviving triplets. Brooke survived for 1 month.
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Old 09-23-2005, 04:43 PM
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Oh Kerry,

Thank God everything is okay now. Good thing there were people right there to help. Keep us updated. We'll keep sending good vibes to Milo!
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad!

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Old 09-23-2005, 07:55 PM
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Kerry,

I am in tears...my heart is pounding...please know that we are saying many prayers for Milo tonight and in the days ahead. He is such a strong little boy...he is a fighter.

Take care.

Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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Old 09-23-2005, 10:17 PM
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Kerry,
I am glad you were able to update. I am glad things are going a little better and he didn't desat for long. Thank God for Xanax! I hope you are feeling better yourself.....Lots of hugs to you and Milo!
Lora
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http://www.caringbridge.org/visit/zoeglasel
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Old 09-23-2005, 10:35 PM
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My sweet Kerry~

I am so sorry for what you are going through. Â*I am so sorry I am out of town this weekend, I am so sorry I am not there to give you a hug or sit with you while you cry on my shoulder. Â*I am sick to my stomach that I had to read this on the board and that I am not able to be there with you. Â*I am sitting in Indiana crying and praying with my mom and thinking of my beautiful little boyfriend. Â*I know he is a fighter and I know he will be OK, but I worry about you. Â*This is not fair and it's about damn time your family got a FREAKING break! Â*Honey, I love you and your family please know I will be sending lots of prayers your way. Â*I will be back in NJ on Sunday, I will be at the hospital as soon as my flight lands. Â*Please, please call me if you need anything!

Guess it's a good thing I didn't take your Xanax!!! Â* Â*

Give Milo lots of love, hugs and kisses from me and Nick.

Love you
Carrie
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Our little miracle, Nicholas Scott born 08/09/02; CHARGE Syndrome, bilateral cleft lip/palate, congenital heart disease, trach and g-tube, hearing aids. Decanulated!
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Old 09-23-2005, 10:46 PM
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Whitney Whitney is offline
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Kerry

I am still thinking of you. I will think of you all night and pray for Milo. I hope you know how much you (and your family) mean to everyone on this board. Please hang in there.

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Mom to twin boys, Alexander and Aidan born on April 1st, 2003. They are former 25-weekers. Alex was trached from 10-03 to 4-05. Also mom to my lovely new daughter Amelia born August 19th, 2011!
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Old 09-23-2005, 11:08 PM
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oh my kerry, that is just awful!! i could not imagine going through that. my heart and prayers go out to you.....

denise
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