Emma had her scope friday

well Emma had her scope on friday, it was to be done one the 12th but they changed the date on us because the Doc was out of town on the 12th, so we went in on friday at a 8am. to day surgery and we got started about 9am they came to take Emma. if it all looked good we would see Emma after with no trach. the Doc came out not to long after they took her, he came to talk to us and seaid i have some not so good news, he said Emma really did need her trach at this time. when we got it she has a grouth unders her voice box. the ENT that did the trach told us that when he put in the trach the grouth, (he called is some kinda web)poped and it was gone, well friday we found out it was still there and it was what was making it so Emma really did need her trach, he said her air way is about the size of her trach tube. maybe the size of a 10 fr cath. so now she also has what others on here take about (cant remember what he called it) but its whe she breaths you can here a lot of noise. striders? now we have have laser surgery to remove it and it will take about 2 or 3 times of that, then we can take out the trach.
what i would like to know and i hope someone can help me understand all this. how hard on the baby is the surgery, how well do they heal. and about how long does all this take. i'm wondering about how long now before we will get the trach out. she did not do to bad after the scope but she didn't eat much that day and today she was craby and cryed a lot. was not till late today before she would eat food again, she did drink her bottle but no food
so im wondering how hard this kinda surgery is on the baby and how well it works.
if any one can help, i do need it,it really scares me not knowing if she will be able to get her trach out. i was really praying that we would be trach free friday and now i don't know when it will happen

thank you for taking the time to read this and maybe helping me
Donna

[sandra]

Hi Donna,

I know a lot of children on this site have had that surgery and should be able to answer. Brian has not been through that.

I'm sorry that you did not get the trach out. So hard to hear another diagnosis and to have had your hope s up.

Hugs, Sandra

[cariaad]

Donna, we haven't had that exact situation, but we have had several times where the dr lasered out some granulation tissue. Alli always handles surgeries very well. She has some bleeding afterwards, but by the next day she is always up and running. I dont think there is any standard way kids react, they are each individual...I know the disappointment is hard, but try to think of the trach as a positive thing right now as it IS providing a stable airway. I hope you get some good answers soon from the drs . Deb

[babyhugger]

Donna,

We haven't had many surgeries, but usually kiddos that handle anesthesia well, do well with surgery in general. I hope Emma progresses well in this next stage to being trach free!

Blessings,

Dawna

[hcs_mom]

Donna,

I'm so sorry you got disappointing news. We've been in for several bronchs since Hannah's LTP...and with each bronch, the hope of coming home without a trach. We started that in June...she just had a bronch on Monday, and we still have a trach.

I don't know much about laser surgery, but it's not an "open" procedure like an LTP or CTR, so recovery, I would think would be quicker. Hannah's usually a little "off" after a bronch too...usually the whole day is a wash.

I would encourage you to contact Emma's ENT with your questions and conerns. Most docs are happy to answer your questions and explain things a little more in depth. Those few minutes you get with the doc immediately following surgery can be so rushed. And when you get unexpected news...you are bound to come up with more questions...you've had time to process the info they've given you.

Best of luck to you and Emma. I pray she sails through these laser procedure(s) and she is trach free soon.

Jennie