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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
09-13-2005, 11:16 AM
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Mandi
Will be sure to keep Alissa in our prayers. All the best. Julie
__________________
  Sam Feb 11 2003 Opitz G/BBB syndrome, mickey, nissen, autistic,supraventricular tachycardia, bronchiolitis obliterans. decanned May 30 2009. 2 brothers Jonathan (23) James (14). I am first and foremost a child 
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#2
09-13-2005, 11:52 AM
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Mandi --
Allisa and you will be in my thoughts and prayers these next few months. Jack had his cataracts removed when he was a year old and lens implants when he was 2 years old. He tolerated surgery and recovery very well. Good luck and please keep us posted on everything. Hugs, Ann
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Ann-mom to Jack- 14 yrs old;vent dependent;dystroglycanopathy congenital muscular dystrophy; also mom to Hilary (22), Mary (19) and Eric (10) Jack's Journey and Then Some TouchStones of Compassionate Care The Willow Tree Foundation   “Somewhere over the rainbow, skies are blue, and the dreams that you dare to dream really do come true”
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#3
09-13-2005, 12:04 PM
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Best of luck and I'm praying everything goes wonderfully!
__________________
Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.  B & C are surviving triplets. Brooke survived for 1 month.
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#4
09-13-2005, 01:11 PM
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Wow! That's a lot. Hopefully it will be over before you know it. Jacob had his lens extraction surgeries last year on almost the exact dates. He won't be getting implants, though. He did very well, although he wasn't a happy camper with that huge patch on his eye. He couldn't wear his glasses, so he couldn't even see out of one eye.
I'll be praying that all goes well! Best wishes, Amanda
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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#5
09-13-2005, 03:20 PM
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Mandi,
Wow! That's alot of stuff! I was dizzy just reading about it. Hope all goes well  Blessings, Dawna
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Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11. Photography website: http://pricelessmemoriesphoto.com/ 
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#6
09-13-2005, 07:56 PM
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Mandi,
What a schedule! I pray Alissa bounces back quickly from her surgeries. Please feel free to email/call, especially when you are here in Cinci. We should be heading back down to the hospital around the same time you are here. Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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#7
09-14-2005, 05:38 PM
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You got it Mandi! I often wish I was the fairygod mother on Schrek...but a good one, so I could wave my magic wand and *poof*! It never gets easier...all the surgeries. Make sure you too stay away from any cootie carrying people and get rest and take extra vitamin c. Staying in the hospital so much just sets your stress and immune system into over drive! I feel for ya! Hugs and prayers coming your way.
Janet
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Janet, mom to McKenna (5) and Randy (21). McKenna, currently speaking in tongues at a rate of 80 gibberings per minute driving her parents, sibling into a happy state of dazed insanity! Trached at 2 months d/t lymphangioma
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#8
09-15-2005, 07:33 AM
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I will be sending prayers your way, that all goes well.
Lots of love, Teresa ________ Bondage Stories Last edited by T-bone : 03-25-2011 at 04:33 AM.
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