Spring decan. for abby?

[T-bone]

I certainly hope so.
Abby is a lifer with the vent. So her doctor says anyway, not sure if I believe that or not. But anyways, the plan has always been to keep the trach until she is around 7-9 or so. Then she would be transitioned to a nasal mask while she sleeps. The only reason that he would not want to transition her is if she is mature enough to be able to keep the mask on. Well, she hates her vent and we still have a hard time keeping that on her and she has had it for 4 years. But I figure that we owe Abby at least a chance to see if she can do it or not.
We are resigned to having the trach for a few more years, so if this does not work then we are okay with it. We will not pressure Abby at all. The doctors way of transiting her would be to put her into the ICU and throw a mask on her. I don't think so, I want to get one before hand and to let her see it and explain it to her and then when she is hooked up to her trach I will slip it on a few times, just so she can get used to it and then only turn it on when we are in the hospital.
I am trying to not get my hopes up to high, everyone knows the danger in that. But I am also quite excited at the possibility.
Her doctor wasn't thrilled with the idea of trying it so early. But why not at least try. Abby has suprised us so many times before, that maybe she will again.

Take care,
Teresa
________
Casualty insurance dicussion

[Jacob's Mom]

Teresa, That is wonderful news. I will be praying that all goes well and that Abby tolerates the nasal mask.

Best wishes,
Amanda

[Ann]

As you know Teresa, it's the parents who have to take the lead and push the doctors to do what we want. Â*For some reason, doctors often fail to realize that we, more so than them, only want what is best for our child. Â*We don't make decisions that will harm our child, and we are willing to go back to where we started if it doesn't work out (just ask Erin and Deb)... but, as you said ... you are entitled to give it a try because you know Abby better than anyone else. Â*Good for you for trying and I hope and pray things work out, but, even if they don't --at least you know you gave it your best shot.

Go for it!

[Zoe's Mom]

Teresa,
That's good news! Like Ann said, it doesn't hurt to try. You aren't going to do anything that is going to hurt Abby. I hope she tolerates the mask well!

Lora

[sandra]

I hope it goes well. Hang in there and stick to your guns. If you feel she is ready to try, than she probably is ready!

[twintotwin]

T- Try to get your hands on a mask, maybe see if one of your nurses can get hold of one (if you have nursing).
Last week I asked the driver for our DME for a nasal canula to try. (for the boys, not me. Ok...I tried it too.)

I will cross my fingers for Abby!

~K

[annettevz]

Oh Teresa... That's awesome news!! I hope you can get a hold of a mask and try!!

Keeping my fingered crossed that everything goes well.

Annette

[babyhugger]

Hey Teresa,

Hope the mask does the trick for our little Miss Priss! It sure can't hurt to practice and see what she will tolerate. Push for what you think is right for her. You seem to have great instincts, so I say trust your gut!

Blessings,

Dawna