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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

09-02-2005, 09:05 PM
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Join Date: Jul 2004
Location: USA
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God Chooses A Mom
Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothers of handicapped children.
Did you ever wonder how mothers of handicapped children are chosen? Somehow I visualize God hovering over Earth selecting his instruments for propagation with great care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger.
"Armstrong, Beth; son; patron saint, Matthew.
"Forrest, Marjorie; daughter; patron saint, Cecelia.
"Rudledge, Carrie; twins; patron saint.... give her Gerard. He's used to profanity."
Finally, he passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious. "Why this one, God? She's so happy."
"Exactly," smiles God. "Could I give a handicapped child a mother who does not know laughter? That would be cruel."
"But has she patience?" asks the angel.
"I don't want her to have too much patience or she will drown in a sea of self pity and despair. Once the shock and resentment wears off, she'll handle it. I watched her today. She has that feeling of self and independence. She'll have to teach the child to live in her world and that's not going to be easy."
"But, Lord, I don't think she even believes in you."
God smiles. "No matter. I can fix that. This one is perfect. She has just enough selfishness."
The angel gasps, "Selfishness? Is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, there is a woman I will bless with a child less then perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word.' She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle and know it! When she describes a tree or a sunset to her blind child, she will see it as few people ever see my creations.
"I will permit her to see clearly the things I see - ignorance, cruelty, prejudice - and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side."
"And what about her patron saint?" asks the angel, his pen poised in mid air.
God smiles. "A mirror will suffice."
Erma Bombeck
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002).
Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!
The Birthday Boys by TwinTransfusion, on Flickr
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09-03-2005, 05:28 AM
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Join Date: Dec 2003
Location: Ohio
Posts: 2,990
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I've seen this...what a beautiful reminder of how blessed I am. Thanks.
Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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09-03-2005, 10:54 AM
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Join Date: Jan 2004
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This is my favorite "mom of a special needs child essay." Erma was brilliant.
My favorite line . . . it is so true: "I will permit her to see clearly the things I see - ignorance, cruelty, prejudice - and allow her to rise above them."
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Mom to Bobby, born 10-03, Beckwith-Weidemann Syndrome, trached December 03 due to macroglossia (enlarged tongue) causing upper airway obstruction. Also Mom to Audrey (13) Maddy (11) and Billy (9). Bobby was DECANNULATED 8-17-04 (8months and 1 day with the trach).
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09-03-2005, 12:10 PM
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Join Date: Aug 2005
Location: Canada
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I love reading that essay. Thankyou for sharing it.
Teresa
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Honda cbr600f
Last edited by T-bone : 03-25-2011 at 04:30 AM.
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09-07-2005, 04:44 PM
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i had never herd that before, yet maybe its just my way of not controlling my self but i cry lots! we are the choosen ones
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09-09-2005, 11:36 AM
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Join Date: May 2005
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I love it and I have this poem in a 8x10 frame I discovered this poem when Andrew was in the nicu it's so true.I still cant help myself by asking WHY? Why me? I guess I will find out the answer when.....
ITS BEAUTIFULL,
linrocco@yahoo.com
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09-09-2005, 11:37 AM
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Join Date: May 2005
Posts: 141
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I love it and I have this poem in a 8x10 frame I discovered this poem when Andrew was in the nicu it's so true.I still cant help myself by asking WHY? Why me? I guess I will find out the answer when.....
ITS BEAUTIFULL,
linrocco@yahoo.com
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09-09-2005, 11:39 AM
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Member
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Join Date: May 2005
Posts: 141
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I love it and I have this poem in a 8x10 frame I discovered this poem when Andrew was in the nicu it's so true.I still cant help myself by asking WHY? Why me? I guess I will find out the answer when.....
ITS BEAUTIFULL,
linrocco@yahoo.com
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09-10-2005, 08:07 PM
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Join Date: Jun 2005
Location: USA
Posts: 138
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I was just asking myself that question and wondering if I could handle it all. Thank you for sharing, it could not have come at a better time.
Barbara
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Mother of Johnny a beautiful Full term baby/Diaphragmatic Hernia CDH/ meconiun aspiration/ Severe pulmunary hypertension / NJ Tube till 7 months/ vented since March 29 at birth, trach since June 24/ Tracheolmalacia / Nissen w/g-tube October 21
www.carepages.com --carepage name:johnrmurphy
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