Pediatric Tracheostomy Home Care Guide at Amazon.com


Go Back   Aaron's Tracheostomy Message Board > Pediatric Tracheostomies

Pediatric Tracheostomies For parents and caregivers of children with tracheostomies.  Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support.

Reply
 
Thread Tools Display Modes
  #1  
Old 03-26-2002, 03:07 PM
Michael's mom Michael's mom is offline
Member
 
Join Date: Mar 2002
Location: Virginia, USA
Posts: 305
Talking

If you are a Canadian, or have experience with the Canadian health care system/legal system, please read this!! Our fellow poster "Ardyth" is having some serious trouble trying to get her daughter home. She has a trach, is on a vent, and has some other issues requiring 24 hour nursing care. Most of the children here at least started in that position and we were able to bring our children home in the US. Ardyth really could use your help and support! She is fighting tooth and nail and is getting no support from the Canadian health system. It is as if the hospital has custody of her child and they won't let her come home. You all remember how frustrating and scary and out of control you felt when your children were in the hospital. If you could please email Ardyth from her post on page 2 or post here, perhaps we could help her to get her daughter home. Thank you in advance for your help and prayers for her family. Ardyth's friend, Susan
__________________
Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious
Reply With Quote
  #2  
Old 03-27-2002, 12:22 PM
Michael's mom Michael's mom is offline
Member
 
Join Date: Mar 2002
Location: Virginia, USA
Posts: 305
Default

Here's some more info on Ardyth from her last post.. Hi, I looked at my message and thought maybe I should explain about my daughter.Shealee was born Sept.14/99 and was diagnosed fairly quickly with vaters association. She has had heart surgeries,trachea surgery for a stenosis just above the corina,right and left broncialmacia, paralysis in left diaphram which occured during cardiac surgery,has a colostomy due to imperforate anus,has had a fundal plycation,g-tube, trach and has had many bronchs as her airway has almost completely closed off twice due to granuloma. She is thriving now but we are having a really hard time getting her home, which is the reason, I am asking if others have had problems and how they cope with them. After being in the hospital since birth is was joyeus to know she can come home,and in our wildest dreams never imagined all the problems associated with trying to accomplish that.It is very disheartening. Thanks
__________________
Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off


All times are GMT -5. The time now is 08:45 AM.


Disclaimer: The information and resources on Aaron's Tracheostomy Page, Aaron's Tracheostomy Message Boards and the Trachties Listserv are for educational purposes only. This web site and its resources are not engaged in rendering medical, pharmaceutical nor therapeutic advice or professional services. The information provided through these pages, message boards and listserv or any links from this web site should not be used as a substitute for professional advice by qualified doctors and/or therapists.

Powered by vBulletin® Version 3.6.5
Copyright ©2000 - 2013, Jelsoft Enterprises Ltd.