Here's some more info on Ardyth from her last post.. Hi, I looked at my message and thought maybe I should explain about my daughter.Shealee was born Sept.14/99 and was diagnosed fairly quickly with vaters association. She has had heart surgeries,trachea surgery for a stenosis just above the corina,right and left broncialmacia, paralysis in left diaphram which occured during cardiac surgery,has a colostomy due to imperforate anus,has had a fundal plycation,g-tube, trach and has had many bronchs as her airway has almost completely closed off twice due to granuloma. She is thriving now but we are having a really hard time getting her home, which is the reason, I am asking if others have had problems and how they cope with them. After being in the hospital since birth is was joyeus to know she can come home,and in our wildest dreams never imagined all the problems associated with trying to accomplish that.It is very disheartening. Thanks
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Michael's mom, 2 yo with hypotonia, possible myopathy, vent dependent at night, Beautiful, beautiful smile, and hugs are contagious
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