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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |

08-11-2005, 10:24 PM
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Senior Member
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Join Date: May 2005
Location: Wisconsin, USA
Posts: 1,733
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I know it's a while away, but I have a few questions about the annual trach conference next June. My hubby and I thought we might go and are trying to plan work schedules for the vacation if possible.
Is there a cost? I read the info on the hotels from the last conference and know there is a cost to that. I am assuming it's okay to bring our compressor and humidifier to the hotel?
Are activities planned for the whole family? Am I able to bring Zoe to some things?
Zoe may be decannulated this spring (hopefully!). This may sound stupid, but can we still come if she no longer has a trach?
Thanks for answering my questions so far in advance.
Lora
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08-11-2005, 10:35 PM
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Administrator
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Join Date: May 2002
Location: Phoenix, Arizona
Posts: 7,320
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Hi Lora,
I'm so happy you are thinking about attending the trach conference. Â*If you check out the brochure from the first conference (see Cindy's link) you can get an idea of what types of things we planned. In addition to talks by medical professionals, there are lots of things planned for the kids and their families -- that is really the whole reason for the event in the first place. We have to throw in a few talks by doctors to get corporate sponsorship (i.e. $$$). Â*There is no cost to attend the conference other than your travel expenses and accommodations. Â*We did, however, charge for the two dinners that we had ($10/person/dinner). The first night we had our Gala, which included dinner, a free photo shoot and a DJ with lots of dancing. It was a lot of fun (see Cindy's pictures). The second night we had a carnival for the kids with dinner and entertainment. Â*Anyway, long answer, but just wanted to let you know that there will be lots of kid/family things planned in addition to the speakers.
Also, several of the kids who came last year were decannulated. Â*Even if your child no longer has a trach, it's still a great opportunity to meet other families who've been there, done that!
Hope to see you next June.
~Ann
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08-11-2005, 11:04 PM
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we're hoping to come too. Thanks for the info!
Theresa
Bridget's Mom
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08-12-2005, 08:01 AM
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Senior Member
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Join Date: Nov 2003
Location: Texas, US
Posts: 5,835
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We are hoping to go and Brian may be decannulated by then. I still want to meet people from this board.
__________________
Mom to Breanna (15), David (12), Christopher and Brian (almost 5). Brian decanned in 2006 and had his g-tube removed in 2007.
B & C are surviving triplets. Brooke survived for 1 month.
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08-12-2005, 08:19 AM
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Senior Member
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Join Date: Jun 2005
Posts: 2,879
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We want to come too! It sounds great and I can't wait to put faces with names
Dawna
__________________
Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11.
Photography website: http://pricelessmemoriesphoto.com/
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08-12-2005, 10:10 AM
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Senior Member
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Join Date: Nov 2004
Location: Sarnia, Ontario, Canada
Posts: 1,852
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I would really like to go too!
Annette
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Annette, mom to Ashley born May 13/03, pfeiffer syndrome type 2, cloverleaf skull, g-tube, fundo, shunt, dev. delay, seizures, untreatable central apnea. Decanned September 3/09!!! Also mom to Mitchell born Feb 27/08, perfectly healthy. They've made my life complete.

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08-12-2005, 02:27 PM
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Senior Member
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Join Date: May 2005
Location: Wisconsin, USA
Posts: 1,733
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Ann-
Thanks for all the info! I hope everything works out and we can go. We just have to figure out transportation and my DHs vacation time from work.
Thanks again!
Lora
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