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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
07-25-2005, 04:32 PM
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Just a short update on Holly. She has been capped(during the day) since friday and she is doing good. She has gotten choked a couple of times and I have had to reminder her to cough out her mouth. When she use to cough she would cover her trach with her hand, now she has started covering her mouth. She is so smart!!! I have noticed with her cap on her O2 are higher and with it off they drop. Has anyone experinced this?
Thanks for your continue prayers. Misty
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Miracles still happen! Holly Grace 5-18-2001, Escobar Syndrome(webbing, muscle contracted, scolosis, club feet, short stature, off set ears(hearing loss), tethercord, fused joints) Diaphramtic herni/enventration, has only left lung, trach, g-tube, 8 surgeries and counting. 
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#2
07-25-2005, 06:29 PM
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That is great news! I was just reading Holly's story on Aaron's page a few days ago - she is quite a little fighter.
I don't know about with the cap, but Jacob tends to sat 2-3% higher with his PMV. It has to be from the back pressure that keeps some PEEP in the lungs. Best wishes for continued success with capping.
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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#3
07-25-2005, 07:18 PM
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Misty,
Such great news! Tell Holly to keep up the good work! Tristan also has higher sats with his PMV on. We aren't capping yet, so I don't know about that. Blessings, Dawna
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Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11. Photography website: http://pricelessmemoriesphoto.com/ 
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#4
07-25-2005, 07:44 PM
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Misty,
We've not been able to cap Hannah yet, but I've heard, for the same reasons Amanda mentioned, that capping or even a PMV restores some of the natural PEEP and will help their sats go up. Holly darling, keep up the great work! Jennie
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Mommy to Hannah 8/2/03: fmr 25-weeker, trached 11/03 for subglottic stenosis, LTP 4/05, CTR 4/06, LTP 1/07. Decannulated 1/19/2007!! Gearing up for reconstruction #4; Also Mom to Brianna, 2/22/98: fmr 24-weeker, a little dramaqueen. My amazing gifts.
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