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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
| View Poll Results: Please help with my research - Take a quick poll! | |||
| less then 2 |
  
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3 | 5.36% |
| 2-3 |
  
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2 | 3.57% |
| 4-5 |
  
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7 | 12.50% |
| 6-7 |
  
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12 | 21.43% |
| more then 7 |
  
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32 | 57.14% |
| Voters: 56. You may not vote on this poll | |||
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#1
07-25-2005, 03:15 AM
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Please help me with some research. My project is the impact of handicap children on the family. This poll will give me a preliminary figure on how many different providers, including doctors, physical therapists, occupational therapists, mental health professionals, etc. your child sees on a regular basis.
Thank you for your input. 
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#2
07-25-2005, 06:48 AM
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We have more than 7 with just the school system, not counting doctors. Plus multiply that by 3 children who all have special needs and not all the same specialists....
FYI for your research; take a look at " People first language" ei: children with disabilities or children with special healthcare needs, rather than handicapped children. This might also be helpful: The Impact of Pediatric Tracheostomy on Parental caregiver Burden and Health Status
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Cindy - Mom to Aaron (age 19), trached for 4 years, subglottic stenosis, ADHD, learning disability, former 26 week preemie and identical twin to Eric (age 19), spastic quad CP, moderate MR, seizure disorder; Anthony (age 19), spastic quad CP, g-tube, seizure disorder, cortical vision impairment, profound MR; and Natasha (age 6) CP, cortical blindness, seizure disorder, profound MR, shunt, g-tube.  Home Page: http://www.bissells.com
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#4
07-25-2005, 09:03 AM
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OT, PT, SLP, O&M,Otolargnologist, Pediatrician, Neurosurgeon, Neurologist, Gastroenterologist, Pulm, Pediatric Surgeon, opthlamologist, Orthotics and Phsical Medicine.
14, but I still feel I am missing someone.
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SW and Misty...parents to Kathlynn(16), Stephen(14), and Frank(13) Frank= CP, CMV, microcephaley, epilepsy, chronic lung disease, non-verbal; decannulated 9/7/06; happiest little boy I know.
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#5
07-25-2005, 09:48 AM
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We have more than 7...
OT, PT, Speech, Feeding Therapist, Ped, Pulmonary, GI, Opthamology, Nutrition...
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Linda - Mom to Collin, former 30wkr, IUGR, Severe BPD, in NICU 9months (decannulated 8/03), g-tube (removed 9/10), Neurodevelopmental Delays (secondary to complex medical history),ADHD-Inattentive Type, Sensory Processing Disorder www.nicumama.com www.purplelotuswebsitedesign.com
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#6
07-25-2005, 10:10 AM
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Are you ready?
ST for feeding ST for speech & language ST consultant for speech Psychologist for feeding OT Dev Teacher Dev Specialist Consultant PT Community Support Specialist (x3) Pulmonary Cardiologist Cardiac Surgeon 2nd cardiologist for routine 2nd opinion (different hosptial) Endocrine Immunology Dental Dermotology Neuro surgeon Nephrology Neonatology Ped General Surgery (for button) Genetics Developmental Physican Orthopedics ENT = Yikes!!! -Shari
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Miracles Do Happen!!! Jacob's mom, 3 yr old with DiGeorge/VeloCardioFacial Synd., TOF with APV, trached 9-11-01, G-button, LTV 950 for 2 1/2 years. Decannulated April 12, 2004!!!
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#7
07-25-2005, 10:57 AM
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More than 7 here also... therapists are always popping up at our house and I always forget they are coming because there are so many different appointments to worry about
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#8
07-25-2005, 11:36 AM
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Sp, PT, Pulm., ENT, Orth, Hand surg
These poll has made me thankful for the "FREE" time I have  Misty
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Miracles still happen! Holly Grace 5-18-2001, Escobar Syndrome(webbing, muscle contracted, scolosis, club feet, short stature, off set ears(hearing loss), tethercord, fused joints) Diaphramtic herni/enventration, has only left lung, trach, g-tube, 8 surgeries and counting.
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#9
07-25-2005, 11:47 AM
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We have more than 7:
Therapists: OT, PT, Speech, ECD, VI, assistive tech Doctors: pediatrician, neurologist, ophthamologist, dental, pulmo, ENT, GI, cardiologist, genetics, orthopedic, diabetologist I think that's it... Shari, I think you have everyone beat!!!
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 ~Marcie~Mom to Nate (8); trached at 5 wks due to chronic aspiration; CP, hypoglycemia (controlled with diet and meds), seizures, g-tube fed; Also mom to Brianna (16), Allison (14) and Delaney (3) My blog Life Is Good
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#10
07-25-2005, 01:13 PM
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-Pediatrician
-Pulmonologist -Gastroenterologist -Cardiologist -Opthamologist (2) -Otolaryngologist (2) -Orthopedist -Orthotist -Physical Therapist -Occupational Therapist -Speech Therapist -Neurologist -Dentist *I think that's ALL*
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Amanda,Mom to Jacob, greatest kid in the world. X-Linked Myotubular Myopathy, trach, vent, g-tube. 
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