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| Pediatric Tracheostomies For parents and caregivers of children with tracheostomies. Please limit discussion to seeking and sharing of information pertaining to tracheostomy care, medical issues, special needs, disabilities, networking and moral support. |
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#1
07-22-2005, 03:37 PM
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Ok we are capped!!! Holly has had it on for 2 hours with no problems. WE downsized her trach last week, but the doctor decided he wants to go down again. He wants her in a 3.o Bivona uncuffed. She is excited, I am nervous!!! Keep your fingers crossed and pray for her. We will be going for sleep study next month and hopefully the big "D" in Sept.
Misty
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Miracles still happen! Holly Grace 5-18-2001, Escobar Syndrome(webbing, muscle contracted, scolosis, club feet, short stature, off set ears(hearing loss), tethercord, fused joints) Diaphramtic herni/enventration, has only left lung, trach, g-tube, 8 surgeries and counting. 
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#2
07-22-2005, 05:35 PM
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Oh Misty and Holly,
I am so excited for you all! We will keep you in our thoughts and prayers  Holly is such a doll baby! Please keep us posted. This is so cool.  Blessings, Dawna
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Dawna, Mom to Tristan 6 yrs, former 22wk preemie with trach (decanned 6/20/07!!), Josh 25, Jenna 21, Gracie 14, and Jon 11. Photography website: http://pricelessmemoriesphoto.com/ 
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#3
07-22-2005, 09:23 PM
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That is awesome! Go Holly!
Kerry 
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Kerry, mom to identical twins, Elijah & Milo, both trach dudes, 26-weekers as a result of Twin To Twin Transfusion Syndrome (2002). Daughter, Maisie ('05) & Henry ('08). *BOTH decanned after LTP w/rib graft 4/10 & 7/10!* wooo hooooo!  The Birthday Boys by TwinTransfusion, on Flickr
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#4
07-22-2005, 10:23 PM
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Alright! Way to go!
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Melisande H. Mother to The Preeminent Grand Poohba Donovan (5/27/03), still some "resolving" apnea, on the autism spectrum and some cerebellar malformations. Trached since he was 6 weeks old. Recently DECANNULATED 4/16/09!! Big brother to Conrad! 
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#5
07-23-2005, 07:32 AM
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Go Holly Go!!! Good luck. I hope everything works out for you. We are trying the cap next month. We are excited and nervous too.
Jarita
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Doug, father of Mason. Hemangeoma in Trachea. Had Tracheostomy 5-14-2004 at 4 months of age. Decanned 8-19-05. Closure Surgery 5-5-06.
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#6
07-23-2005, 09:54 AM
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I love hearing stories like this! It really gives me hope.
Good luck!!! Annette
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Annette, mom to Ashley born May 13/03, pfeiffer syndrome type 2, cloverleaf skull, g-tube, fundo, shunt, dev. delay, seizures, untreatable central apnea. Decanned September 3/09!!! Also mom to Mitchell born Feb 27/08, perfectly healthy. They've made my life complete.   
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